Table 1.

The final list of patient-reported outcome measures selected from the e-Delphi process for patients and families with type 1 diabetes using continuous glucose monitors.

Domain and instrument									Items, n			Age (years)			Scheduled
Diabetes distress
	Problem Areas in Diabetes scale														Annually, emergency department visit, and hospitalization
		Child						20			8-11
		Youth						26			>12
		Parent						26			Not restricted
	Diabetes Distress Scale							17			>18
	Hypoglycemia Fear Survey														Hospitalization
		Child						25			6-18
		Parent						28			Not restricted
	Blood Glucose Monitoring Communication questionnaire														Hospitalization and emergency department visit
			Child					8			8-18
			Parent					8			Not restricted
Autonomy
	Diabetes Knowledge Test							19			12-18			Baseline and transitional milestones
	The Mercy What I Know About Diabetes							23			>18
General health and quality of life
	Type 1 Diabetes and Life measures														Annually
						Child		21			8-11
						Adolescent		23			12-17
						Parent		22			—
Psychosocial
	Patient Health Questionnaire-9							9			>12			Annually
	Diabetes Family Responsibility Questionnaire														Annually
					Child		17			8-18
					Parent		17			Not restricted
	Diabetes Strengths and Resilience Measure														Annually
					Child		12			9-12
					Adolescent		12			13-17
					Young adult		16			18-22
Technology acceptance
	Diabetes Technology Attitude														Annually
				Youth				5			>12
				Parent				5			Not restricted
	Glucose Monitoring Satisfaction Survey							15			>12			Baseline