Table 3.

Interview transcript quotations: treatment

Quote
“To have my vision maintained. I want it to maintain the good vision I have […] I can only see with one eye; it’s particularly important to me”
“No great expectations were raised. I was told it was not curable. You can only delay it by taking certain measures. And the professor also said, ‘I can only tell you that you will not go blind. But there is no improvement or cure at the moment’”
“It's a bit like going to the dentist: you have a filling, you have this, you have that, and I'm always glad when it's over. I think it's generally normal, except that some people will have more angst than others, won't they?”
“I felt bad, I was apprehensive about the injection”
“And the more injections I receive, the more anxious I am”
“[My neighbour] couldn't believe how I walked out of the [clinic] and I was fine”
“I was nearly blind, that was from the anaesthetic. I had to be led out by my wife and my daughter to the car”
“To my main ophthalmologist it is good. I am very satisfied with it. But with the others not. I simply get too little information. In terms of treatment, it may be good. But I just don't get enough information”
“Oh, yes, he is willing to actually answer your questions and he's got a very nice manner with him, he's got a very soft manner. And I think as long as you're asking questions around your eyesight, rather than, I don't know, perhaps other things that you might bring into the conversation, you know what I mean?”
“I think there were about 50 consultations that day and all the patients were queuing to receive an injection. I can understand that the intern gets bored when he sees the last patients”
“I thought [my disease] was going to be treated in 3, 4, 5 sessions, injections. And it’s not the case, it’s dragging on and on”
“I just thought it was long term, you know, ongoing, I thought I would go every 8 weeks perhaps for the rest of my life. I didn't know”
“I expect the frequencies [of injections] to increase. It would be nice when I only had to go there every 3 months or four times a year, or when the doctor said, ‘The drug has had such a good effect.’ I cannot see any difference the last three times: no bleeding, no incrustation. I have never asked”