Table 1.
Participant characteristics.
| Variable | Primary survey (n = 109) |
|---|---|
| Age (mean, sd) | 39.96 (12.93) |
| Gender identitya | |
| Male | 11.0% |
| Female | 79.8% |
| Non-binary, genderqueer, or another gender identity | 8.3% |
| Prefer not to say | 0.9% |
| White racial identity | 88.1% |
| Under guardianship | 1.8% |
| Self-reported Primary disabilitya | |
| Autism | 7.3% |
| Speech/language impairment | 0% |
| Blindness/visual impairment | 1.8% |
| Traumatic or acquired brain injury | 2.8% |
| Deaf/hearing impairment | 2.8% |
| Specific learning disability | 1.8% |
| Intellectual disability | 0% |
| Mental or emotional health condition | 3.7% |
| Orthopedic impairmentb | 18.3% |
| Other health impairmentc | 52.3% |
| Family’s annual income | |
| <$20,000 | 12.8% |
| $20,000-$44,999 | 19.3% |
| $45,000-$139,999 | 39.4% |
| $140,000-$199,999 | 11.0% |
| >$200,000 | 11.0% |
| I don’t know | 5.5% |
| I feel like I have enough money to do the things I need and want to do | 0% |
| I feel like I don’t have enough money to do the things I need and want to do | 1.8% |
| I’m not sure if I have enough money | 3.7% |
| Highest level of education completed | |
| Some high school, high school, or GED | 4.6% |
| Some college or two year college degree | 18.4% |
| Four year college degree | 39.5% |
| Master’s degree | 22.0% |
| Doctorate degree | 15.6% |
a
Some participants did not respond to this question so the sum percent is <100%.
b
Example orthopedic impairments include: cerebral palsy (n = 4), arthritis (n = 3), spinal cord injury (n = 4), and fibromyalgia (n = 2). Some examples of other orthopedic impairments reported by only one participant include: Congenital amputations, spinal cord atrophy, and adhesive arachnoiditis.
c
Example conditions include: Ehlers-Danlos Syndrome (n = 7), arthritis (n = 6), fibromyalgia (n = 7), autoimmune conditions (n = 4), postural orthostatic tachycardia syndrome (n = 3). Additionally, some participants reported having other chronic health conditions, such as cancer, chronic Lyme’s disease, and diabetes.