Table 1.
Overview on questionnaires used and data gathered at different measurement time points
Time Point | Questionnaires | Specification | |
---|---|---|---|
T0 | Prior to genetic test result disclosure | ▪ HADS | ▪ Anxiety and depression |
T1 | 6–8 weeks after test result disclosure |
▪ HADS ▪ FPI-R ▪ FMBS ▪ DCS ▪ Intention on RRM/IBS ▪ Sociodemographic data ▪ Family history ▪ Clinical data/cancer history ▪ Risk perception |
▪ Anxiety and depression ▪ Personality ▪ Coping styles ▪ Decisional conflict |
T2 | 6–8 months after test result disclosure |
▪ HADS ▪ Actual uptake of RRM/IBS |
▪ Anxiety and depression |
Abbreviations: T Measurement time points, HADS Hospital Anxiety and Depression Scale, RRM Risk reducing mastectomy, IBS Intensified breast surveillance, DCS Decisional Conflict scale, FMBS Frankfurt Monitoring and Blunting Scale, FPI-R Freiburg Personality Inventory