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. Author manuscript; available in PMC: 2024 Feb 1.
Published in final edited form as: Pediatr Blood Cancer. 2022 Dec 10;70(2):e30089. doi: 10.1002/pbc.30089

TABLE 2.

Health and Healthcare Articles Included in Review

Author (Year) Research Design Study Population SDoH Variables Results
Access to Healthcare
Kayle (2020) Retrospective 3635 adults (US) Insurance type Medicaid expansion did not improve enrollment or ACU
Carroll (2018) Prospective 73 adults (US) SES, ACU SES and pain-related anxiety increased ACU in patients with SCD
Brodsky (2017) Retrospective 88 adults (US) PCP, insurance type, ACU Absence of PCP and ACU frequency increased 30-day readmission
Jacob (2016) Cross-sectional 38 adults (US) Barriers to care Parents of patients with SCD reported more barriers to care due to the gap in primary care
Smeltzer (2016) Prospective observational 545 children (US) Distance to CSCC Greater distance to CSCC decreased hospital admissions
Liem (2014) Cross-sectional 200 adults (US) Primary care access, barriers to ACU, PCP More access to PCP associated with less ED visits
Boulet (2010) Probability sample survey 19427 children (US) Barriers to healthcare access Patients with SCD reported delay in accessing care and worse health outcomes
Raphael (2009) Cross-sectional 296949 children (US) Medicaid coverage, gaps in insurance Low-income children with SCD had more ACU and higher expenses
Shankar (2008) Cross-sectional 1214 children (US) Distance to CSCC Neighborhoods with CSCC facilities observed less outpatient visits & more hospitalizations
Haque (2000) Cross-sectional 1189 adults/children (US) Socioeconomic disparity, rural/urban access Rural patients had low SES/more barriers to SCD clinic; urban patients had more medical issues
Hand (1995) Retrospective 172 Adolescents/Adults (US) Insurance type, Primary /Specialty care use Stable insurance (Medicare) and primary care did not affect ACU for patients with SCD
Health Literacy
Carden (2016) Cross-sectional 142 adults (US) Health literacy, disease knowledge Lack of disease specific knowledge increased ED visits
Cronin (2019) Cross-sectional 530 adults (US) Financial insecurity, social support, health literacy Missed clinic visits due to financial problems increased hospitalizations/readmissions
Morrison (2018) Cross-sectional 100 adults (US) Health literacy, pain treatment skills Children of parents who underdosed pain medicine had more ED visits for pain
*

SES = Socioeconomic status, SCD = Sickle Cell Disease, ED = Emergency Department, ACU = Acute Care Utilization, PCP = Primary Care Provider, CSCC = Comprehensive Sickle Cell Center, US = United States