Burden |
P |
Transfusions are inconvenient |
Agreement with ‘Anticipated attendance burden for patients’
|
P |
Attendance not a great burden |
Disagreement |
HCP |
Anticipated attendance burden for patients |
Burden |
P |
Transfusion part of routine life |
Agreement with ‘Transfusion has become a part of patient's routine life’
|
P |
Life restrictions, travel |
Disagreement |
HCP |
Transfusion has become a part of patient's routine life |
Distinguishing blood products |
P |
Knowledge gaps for platelets |
Silent |
Distinguishing blood products |
P |
Positive perception of platelets |
Silent |
Distinguishing blood products |
P |
Distinction of irradiated blood |
Silent |
Social connection+Decision‐ making |
P |
Patient involvement generally positive |
Partial agreement with ‘HCP advocates and involves patients in decisions’
|
P |
Transfusion offered with patient involvement in choice |
Partial agreement |
HCP |
HCP advocates and involves patients in decisions |
Social connection |
P |
Interaction with other patients |
Silent |
Social Connection |
P |
Lack of interaction or activity during transfusions |
Silent |
Social Connection |
P |
Curiosity and appreciation for blood donors |
Silent |
Social Connection |
P |
Support from family or primary care HCPs |
Silent |
Supportive relationships |
HCP |
HCPs approachable and bond with patients |
Silent |
Supportive relationships |
HCP |
Efforts to increase patient comfort in unit |
Silent |
Organisational Constraints |
HCP |
Solutions needed to improve processes and ease capacity strain |
Silent |
Organisational Constraints |
HCP |
Constraints to greater discussion of patients’ views |
Silent |
Organisational Constraints |
HCP |
Solutions needed to enhance patient‐HCP and team communication |
Silent |
Organisational Constraints |
HCP |
High and costly blood use for hospital |
Silent |
Organisational Constraints |
HCP |
Complicated management of transfusion slots |
Silent |
Stability and variability of transfusion perceptions |
HCP |
Views on transfusion broadened through haematology exposure |
Silent |
Stability and variability of perceptions |
HCP |
Views consistent and similar to colleagues |
Silent |
Stability and variability of perceptions |
HCP |
Patients’ transfusion perceptions variable |
Silent |
Awareness of risk/Safety |
P |
Discomfort and illness during or post‐transfusion |
Agreement with ‘Short and long term medical and psychological impact’ |
P |
No experienced negative consequences |
Disagreement |
HCP |
Short and long term medical and psychological impact |
Awareness of risk/Safety |
P |
Health risks from high iron levels |
Agreement |
HCP |
Iron overload considered a key risk |
Awareness of risk/Safety |
P |
Potential infection or reaction risk |
Agreement |
HCP |
Infections, antibodies and reactions risks |
Awareness of risk/Safety +Involvement in decision‐making |
P |
Caution needed, blood should be used appropriately |
Agreement |
HCP |
Transfusions prescribed appropriately using guidelines |
Awareness of risk/Safety |
HCP |
Risks mitigated by safe transfusion practices |
Silent |
Awareness of risk/Safety |
HCP |
Risks and benefits established with patients |
Silent |
Awareness of risk/Safety |
HCP |
Risk of not providing a transfusion |
Silent |
Necessity |
P |
Transfusions used as a current and long‐term supportive treatment |
Partial agreement |
HCP |
Transfusions support chemotherapy or used to treat anaemia |
Necessity |
P |
Transfusion prolonging life and aiding survival |
Agreement |
HCP |
Transfusions are vital, aiding survival |
HCP |
Transfusions given to protect health |
Agreement with ‘Transfusion prolonging life and aiding survival’ |
Necessity |
P |
Need for transfusion apparent through symptoms |
Partial agreement |
HCP |
Patient reliance and expressed need for transfusion |
Necessity |
P |
Speculation and doubt over pending transfusion prescription |
Silent |
Necessity +Involvement in decision‐making |
P |
Need established by HCPs and clinical indicators |
Agreement |
HCP |
Team decision on transfusions prescription |
HCP |
Necessity of transfusion established in balance with clinical and patient factors |
Agreement with ‘Need established by HCPs and clinical indicators’ |
Health benefits |
P |
Keep going with daily life |
Agreement |
HCP |
Supportive care to carry on with normal daily living |
Health benefits |
P |
Boosting blood levels |
Partial agreement with ‘Symptom improvement, making patients feel better’
|
P |
Relief of symptoms such as tiredness |
Agreement |
HCP |
Symptom improvement, making patients feel better |
Health benefits |
P |
Can take time to feel benefit of transfusion |
Agreement |
HCP |
Benefits last a limited time only |
Health benefits |
P |
Anticipated benefits |
Silent |
Health benefits |
P |
Patient convinced of benefit by significant others |
Silent |
Health benefits |
HCP |
Shared HCP agreement of transfusion benefits |
Silent |
Health benefits |
HCP |
Some risk‐benefit for patients questionable |
Silent |
Negative emotions |
P |
No concerns or worries with transfusions |
Agreement with ‘Patients perceiving transfusion positively, as a lifeline’ |
P |
Gratitude that transfusions possible |
Agreement |
HCP |
Patients perceiving transfusion positively, as a lifeline |
Negative emotions |
P |
Receiving transfusions unpleasant |
Agreement with ‘Patient anxiety and upset with receiving regular transfusions’
|
P |
Relaxed during transfusion appointments |
Disagreement with ‘Patient anxiety and upset with receiving regular transfusions’ |
P |
Concern of transfusion dependency |
Agreement |
HCP |
Patient anxiety and upset with receiving regular transfusions |
Negative emotions |
P |
Positive emotions of not needing transfusion |
Silent |
Negative emotions |
P |
Attempts to manage worries and fear |
Silent |
Negative emotions |
P |
Perception that doctors dislike prescribing transfusions |
Partial agreement |
HCP |
Concern about downsides of transfusions for patients |
Negative emotions |
HCP |
Patients’ unexpressed potential negative emotions |
Silent |
Negative emotions |
HCP |
Practice concerns and frustrations |
Silent |
Negative emotions |
HCP |
HCPs’ strategies to reduce patient anxiety |
Silent |
Negative emotions |
HCP |
Upset in witnessing patients’ worsening health or death |
Silent |
Alternatives |
P |
Alternatives considered or already in use |
Agreement |
HCP |
Alternatives considered or already in use |
Alternatives +Involvement in decision‐making |
P |
No alternatives, transfusion the only option |
Agreement with ‘No alternatives, transfusion the only option’ |
P |
Confronted with limited or no choice |
Agreement |
HCP |
No alternatives, transfusion the only option |
Alternatives |
P |
Patient preference for alternatives |
Agreement |
HCP |
Support for greater consideration and use of alternatives |
Alternatives |
P |
Patient's body can correct depleted cells |
Silent |
Alternatives |
HCP |
Committed to giving regular transfusions once started |
Silent |
Involvement in decision‐making +Necessity + Health benefits |
P |
Willing acceptance of transfusions |
Agreement |
HCP |
Patient autonomy in their own transfusion decisions |
HCP |
Patient reliance and expressed need for transfusion |
Agreement with ‘Willing acceptance of transfusions’
|
HCP |
Patient questioned on health benefits to provide/continue transfusions* |
Partial agreement with ‘Willing acceptance of transfusions’
|
Involvement in decision‐making |
P |
Deferral of decision‐making to HCPs |
Agreement |
HCP |
Deferral of decision‐making to health professionals |
Involvement in decision‐making |
P |
Decision‐making discussion positive |
Silent |
Involvement in decision‐making |
P |
Routine ‘automatic’ treatment |
Silent |
Involvement in decision‐making |
P |
More frequent transfusions would be resisted |
Silent |
Involvement in decision‐making |
HCP |
Individual transfusion regime for each patient |
Silent |
Involvement in decision‐making |
HCP |
Barriers to discussing transfusion or obtaining consent |
Silent |
Involvement in decision‐making |
HCP |
Tendency towards providing transfusion |
Silent |