Table 3.
The reasons nonusers report for not using social media to communicate with other patients (N=265).
| Self-reported reasona | Values, n (%) |
| Feel no need to communicate (digitally) with other patients | 78 (29.4) |
| I find it too confronting or burdensome | 33 (12.5) |
| I do not know where to find online communities | 30 (11.3) |
| There are too many negative comments | 26 (9.8) |
| I do not have the time | 23 (8.7) |
| The information shared is useless or less valuable | 20 (7.5) |
| I communicate with enough patients personally or via another nondigital medium | 18 (6.8) |
| I do not use social media, lack a computer or digital skills, or do not like obtaining information digitally | 8 (3) |
| I obtain sufficient information via my medical specialist or by searching online | 7 (2.6) |
| I no longer have symptoms or do not like to consider myself a patient | 5 (1.9) |
| I have privacy concerns | 3 (1.1) |
| They do not exist in my language | 2 (0.8) |
| No particular reason | 1 (0.4) |
| Missing | 20 (7.5) |
aMultiple answers were possible.