Table 1.
Participant Demographic Characteristics
| Characteristic | Total No. (%) | Cohort 1 | Cohort 2 |
|---|---|---|---|
| Patient Characteristics | n = 30 | n = 20 | n = 10 |
| Male | 19 (63.3%) | 14 (70.0%) | 5 (50.0%) |
| Age in Years | |||
| 8–12 | 10 (33.3%) | 8 (40.0%) | 2 (20.0%) |
| 13–18 | 20 (66.7%) | 12 (60.0%) | 8 (80.0%) |
| White | 17 (56.7%) | 9 (45.0%) | 8 (80.0%) |
| Diagnosis | |||
| Leukemia | 11 (36.7%) | 9 (45.0%) | 2 (20.0%) |
| Lymphoma | 7 (23.3%) | 3 (15.0%) | 4 (40.0%) |
| Solid tumor | 7 (23.3%) | 4 (20.0%) | 3 (30.0%) |
| Brain tumor | 5 (16.7%) | 4 (20.0%) | 1 (10.0%) |
| Metastatic Disease | 9 (30.0%) | 5 (25.0%) | 4 (40.0%) |
| Relapse | 2 (6.7%) | 2 (10%) | 0 (0%) |
| Treatments Received | |||
| Chemotherapy | 29 (96.7%) | 19 (95.0%) | 10 (100.0%) |
| Surgery | 1 (3.3%) | 0 (0.0%) | 1 (10.0%) |
| Radiotherapy | 1 (3.3%) | 0 (0.0%) | 1 (10.0%) |
| Stem cell transplantation | 2 (6.7%) | 2 (10%) | 0 (0%) |
| Inpatient at Enrollment | 8 (26.7%) | 5 (25.0%) | 3 (30.0%) |
| Date of Diagnosis | |||
| < 6 months before enrollment | 20 (66.7%) | 10 (50%) | 10 (100%) |
| 6 to 12 months before enrollment | 5 (16.7%) | 5 (25%) | 0 (0%) |
| > 12 months before enrollment | 5 (16.7%) | 5 (25.0%) | 0 (0%) |
| English as First Language | 24 (80.0%) | 15 (75.0%) | 9 (90.0%) |
| Other Languages Spoken | |||
| French | 3 (10%) | 2 (10%) | 1 (10%) |
| Tamil | 3 (10%) | 2 (10%) | 1 (10%) |
| Other* | 8 (26.7%) | 7 (35%) | 1 (10%) |
*Other languages included: Urdu (n = 2), Arabic (n = 2), Spanish (n = 1), Mandarin (n = 1), Russian (n = 1), Portuguese (n = 1), Brushaski (n = 1)