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. 2022 Sep;23(9):2881–2890. doi: 10.31557/APJCP.2022.23.9.2881

Table 2.

Characteristics of Included Studies

First author,
country,
year
Design Purpose of study Data collection
method
Sample, settings, sample
size
Key findings Conclusion
McGrath
et al.,
Australia,
2013
A qualitative
design
To explore the survivorship
experience of adult
patients diagnosed with
a hematological malignancy
Open-ended
interviews and
focus group
"HM patients and a survivor
group Cancer foundation
N=50 (n = 26 male; n = 24
female)"
"Participants who know enough about the benefits of
palliative care are more liable to received palliative care at their E-O-L. Many patients reported the pro lems in referral time to the palliative care services. Patients aware that they facing the death."
There is enhancement in the hematology patients'
awareness about the important of palliative care.
Also, there is a great role for the social worker to offer more knowledge about PC services.
Nightingale
et al.,
UK, 2011
Case report To identify key EOL
care issues
Open-ended
interview
"HM patient HMT+PCU units N=1
(acute myeloid leukaemia)"
"Demonstrates the relevance of PC team involvement
Importance of discussing issues around prognosis and
clinical transition; consider sequelae from curative
treatment and interventions at EOL * discussion about place of death and community care"
"Initiating EOL care should be o curred in patients with HM. There is a need for improved coordination,
contact, and referral process between interdisciplinary team members as well as with other hospital or
community resources to Offer comprehensive care of
patients with HM especially in end of life."
McGrath
et al.,
Australia,
2002a
Case report To address the
aspects of PC among
patients face dying in HM
A phenomenological
approach-
open-ended
interview
"HM patient Public Health
Department * N=1
(Mantle cell lymphoma)"
Many factors were noted as facilitator for referral to PC
in appropriate time (knowledge of hospice and palliative
care; appreciated honest information; rapidly changing
the patient condition; fast diseases progress into terminal
stage; strong acceptation of death; direct referral to PC.
Many factors facilitating dying at home (offered dying
at home as feasible option; it is patients wish as career
understanding; career supporting patients in this option;
offering of adequate support and proactive knowledge
for patients.
Positive experience in for a patient with a HM at the
terminal stage. Also, this study give insight on how
to address the neglected palliative needs of patient with HM.
McGrath
et al.,
Australia,
2003
Phenomenological
design
To document experience of
survivors of HM with
spiritual issues
Open-ended
interview
"HM survivors hospital at
Leukemia Foundation of
Queensland N=12
(n=8 male, n= 4 female)"
"Talk about spiritual issues is challenging but helpful.
Patients desire to protect family. Self-autonomy to share
the experience with others Close the illness experience
and need time to talk about other things in life"
The study gives insight for patients with HM that
hope and expectation during their experience is
important to deal with this illness.
McGrath
et al.,
Australia,
2002b
Phenomenological
approach
To analyze the experiences
of hospice/palliative care
among individuals with HM
and their families
Open-ended
interview
"HM patients and their f
amilies One of metropolitan hospitals N=10 "
"Feeling shocked when they hear about their illness or
relapse Knowing their terminal status but they hope to cure and to have a positive attitude Feeling of experimentation. Rapid deterioration No referrals to PC system "
Lack of palliative care provided for patients being
treated for HM
McGrath
et al.,
Australia,
2002
phenomenological
approach
To analyze the experience
of patients with HM during
palliative care treatment
at end of life
open-ended
interview
"HM patients and their
families One of
metropolitan hospitals
N=10"
"High-technology curative treatments are used among HM patient at EOL that does not acknowledge dying and PC Lack of PC referrals Patients are aware that the patient is dying, understand the prognosis and desire to die at home" Many patients' insights are addressed in the context of
exploration the experience of HM patients with
treatment during the last stage.
McGrath
et al.,
Australia,
2002c
Phenomenological
approach
To analyze the experience of patients with HM with
palliative/hospice care at the terminal stage
Open-ended
interview
"HM patients
and their families one of
metropolitan hospitals
N=10"
"Death scene at ICU in which high technological
treatments are used No referral to PC"
"Patients with HM and their families have received
Limited concentration with regard to the
offering palliative care."
"Boucher
et al.,
England,
2017"
Descriptive
qualitative study
To understand opportunities for palliative care
interventions in patients
with acute myeloid
leukemia
Semi-structure
interview
"High-risk patients
with acute myeloid
leukemia. Inpatient HM
unit 22 patients
(n= 10 male, n= 12 female)"
"Patient noted physical and psychological issues
Uncertainty regarding their prognosis, and their sources of support. Some challenges reported by patients included
feelings of helplessness/hopelessness, activity restriction,
fatigue, fevers, and ambiguity regarding management
decision-making"
AML patients countenance substantial issues related
to physical symptoms, psychological distress, and
uncertainty regarding their prognosis

Note, EOL, End of Life; AML, Acute myeloid leukemia; HMT, Hematologic Malignancy & Transplantation unit; PCU, Progressive Care Unit