Table 1.

Head and Neck Lymphedema and Fibrosis Symptom Inventory

Subscale	Reliability excluding baseline (Cronbach's alpha)
Soft tissue and neurologic toxicity	0.86 (12 months) to 0.90 (3 months)
Feeling uncomfortable head and neck region
Tightness
Firmness or hardness of skin
Stiffness
Tingling
Pain on movement of the head and neck
Numbness
Tenderness
Limited head and neck movement
Change in skin texture
Systemic symptoms and social functioning	0.69 (3 months) to 0.78 (12 months)
Feeling anxious
Feeling tired
Problems sleeping
Decreased social activity
Inability complete hobbies
Jaw and oral dysfunction	0.59 (6 months) to 0.76 (12 months)
Problems chewing
Hard to open mouth
Hard to move tongue
Swallowing and taste changes	0.69 (3 months) to 0.80 (EOT, 12 months)
Problems swallowing solids
Problems swallowing soft solids
Something stuck in throat
Taste change
Body image and sexuality	0.75 (EOT) to 0.90 (9 months)
Concerns about looks
Feeling unattractive
Decrease sexual activity
Feeling less sexually attractive
Lack interest in sex
Communication	0.71 (6 months) to 0.80 (EOT)
Problems talking
Voice changes
Hard to be understood
Mucosal irritation	0.49 (12 months) to 0.73 (EOT)
Excess mucous production
Hoarseness
Sore throat

EOT, end of treatment.