Table 1.

Outline of Questions Used to Prompt Responses From Participants

1. How does your diagnosis/diagnoses affect you on a day-to-day basis?

2. Talk me through the journey of your condition. Perhaps start with your symptoms and diagnosis through to now.

3. Were you previously given another diagnosis for this condition? If so, tell me more about it.

4. How have health professionals responded to your illness?

5. Tell me about any positive experiences you've had in health care during your journey.

6. What would you like to see change or improve with treatment regarding your condition?