Table 5.

Examples of qualitative advisory board feedback.

Content category	Initial SMS text example	Summarized feedback	Example quotes
Fatigue education and awareness	“Figure out which type of fatigue you may be experiencing by talking to a health professional. Your fatigue may look different from other people’s fatigue, and they can help you figure out what works best for you.” [PAMa level 3-4]	This statement should be delivered earlier in the week.	“This statement should come earlier.” [58-year-old White woman]
Behavioral techniques	“Schedule meaningful activities into your daily routine to help fight fatigue.” [PAM level 3-4]	The phrase “meaningful activities” is confusing and vague.	“What are some examples...that would be meaningful to somebody that would help them reduce fatigue? Because I had a hard time. If I sat down on the sofa and watched TV all afternoon, I might reduce my fatigue, but I don’t think that’s good for anybody.” [44-year-old White woman]
Energy conservation	“Planning visits and knowing what challenges you will face when arriving will help to manage energy use.” [PAM level 1-2]	The term “visits” is too vague.	“Can you be a bit more specific than ‘visits’?” [58-year-old White woman]
Environment and assistive technology	“Be aware that different body positions can cause strain, which may increase feelings of fatigue.” [PAM level 1-2]	Something we just figure out on our own.	“It just didn’t seem like it really was relevant because it’s like, you kind of live it and you’ve kind of just got to test out the waters to see what works good for you.” [37-year-old Black or African American man]
Simplifying activities	“Reducing the number of transfers you make daily can help you to reduce your fatigue.” [PAM level 1-2]	The text needs to specify to whom transferring is relevant.	“Can you specify what kind of person needs to be concerned about transferring?” [58-year-old White woman]
Diet and hydration	“Eat a balanced diet regularly to reduce fatigue.” [PAM level 1-2]	Examples would be helpful.	“Perhaps include a list of healthy snack ideas. Sometimes people with disabilities are too fatigued to eat full meals.” [57-year-old White woman]
Effective communication	“Talk with family and friends about your fatigue and be honest about how it impacts your daily life. This reality may also make you more aware of your own fatigue.” [PAM level 1-2]	This text message tip is easier said than done.	“This would be a delicate subject, talking to family and friends about fatigue. Other people usually think sitting down for 10 minutes is all I need. They have no frame of reference.” [57-year-old White woman]
Exercise and physical activity	“Find self-care activities that are important to you. This will help to reduce your fatigue levels.” [PAM level 1-2]	Examples would be helpful.	“Pretty vague. Do you mean putting on makeup and styling your hair?” [57-year-old White woman]
Sleep	“Electronic devices’ artificial blue light can suppress the sleep hormone melatonin, which may make it more difficult for you to fall asleep. Track your screen time throughout the day to determine if it makes a difference in your sleep.” [PAM level 1-2]	The 2 statements need a clearer connection between each other.	“I don’t see the correlation between the first and second sentence. It’s the second one that impacts sleep.” [58-year-old White woman]

^aPAM: patient activation measure.