TABLE 1.

Themes, subthemes and sample codes

Themes	Subthemes	Sample codes
Burden of care on Physical Health	Aches and Pains	Back ache, knee pains, headaches, severe headaches sharp pains in the heart
	Loss of appetite	Altered eating pattern, coerced to eat, lost appetite, ate once daily, lost weight, feed child first, eat child's leftover, days without food
	Fatigue	Doing everything by self, does everything for child, tired, fed up, exhausting
	Compromised functional state	Diagnosed with hypertension, self‐care neglect, chronic pains affecting mobility, hospitalized, fainted
	Sleep disruption in response to care demand	Disrupted sleep, keeps wake, sleepless nights, sleep deprivation
Socioeconomic burdens of caregiving	Social isolation	No social gathering, restricted by caregiving, no social events, absent from church‐whole year, shuttling home and hospital
	Role adjustment and sibling neglect	Siblings care for themselves, no family support, husband does chores, husband caring for kids, Keeping up with follow‐up, siblings home alone, no supervision of kids, lateness to school, absenteeism
	Financial burden	Treatment expensive, financial constraints, investigations costly, cannot pay, do not have money, cost of transportation, withdrew all investments
	Loss of employment	Difficulty managing work and child, used all available leave, leave without pay, husband‐lost job

Note: Source: Field, 2019.