Table 2.
Caregiver Outcomes | Shared Outcomes | Patient Outcomes | |
---|---|---|---|
Mental Health | Understanding Treatment Plan | Mental Health | |
During MSKI | Feelings of excessive guilt Feelings of irritability/anger Depressed mood Feeling overwhelmed Sleep disturbances and fatigue Experiencing memory or concentration issues Excessive worry and obsessive symptom checking |
Both patient and caregiver understand treatment plan Ability to comply with treatment plan (eg, medications, mobility, etc) Comfort with pace of recovery |
Excessive fear of medical procedures |
Post-MSKI | Relationships with others are negatively affected | Understand long-term effects/limits | Return to normal behavior/mood Long-term mental health effects from experience with MSKI |
Managing Responsibilities | Managing Responsibilities | Physical Health | |
During MSKI | Maintain self-care Maintain care for other family members Provide support for the patient |
Establish a routine during treatment Shared recovery responsibilities when age appropriate (eg, dressing change) |
Side effects of treatments (eg, GI upset from antibiotics) Pain control Ability to adhere to mobility limits |
Post-MSKI | Return to normal work schedule Concerns about finances |
Family can return to normal activities | Return to normal mobility Return to school and activities Return to normal appetite |
Receiving Support | … | … | |
During MSKI | Feeling heard and getting questions answered by the medical team Have support outside the hospital (eg, family, friends) |
… | … |
Post-MSKI | Comfort leaving the patient with other caregivers or alone (if age appropriate) | … | … |
Abbreviations: GI, gastrointestinal; MSKI, musculoskeletal infection.