Table 3.
Distress levels, marking of unexpected information in IPOS: psychosocial and practical problems
Reported distress | Patient report (IPOS) n (% column) |
Marked unexpected n (% row) |
Association distress level & marking unexpected Chi2-test (two-sided)* |
|
---|---|---|---|---|
Anxious/worried about illness/treatment (n = 136) |
not at all/occasionally** | 24 (17.6) | 6 (25.0) |
Chi2 (4) = 21.2 p < .001 |
sometimes | 46 (33.8) | 1 (2.2) | ||
most of the time/always | 66 (48.5) | 15 (22.7) | ||
overall | 136 (100.0) | 22 (16.2) | ||
Family/friends anxious/worried about you (n = 134) |
not at all/occasionally | 4 (2.9) | 1 (25.0) |
Chi2 (4) = 9.1 p = .027 |
sometimes | 24 (17.6) | 0 (0.0) | ||
most of the time/always | 106 (77.9) | 5 (4.7) | ||
overall | 134 (100.0) | 6 (4.5) | ||
Feeling depressed (n = 134) |
not at all/occasionally | 40 (29.4) | 3 (7.5) |
Chi2 (4) = 22.6 p < .001 |
sometimes | 51 (37.5) | 0 (0.0) | ||
most of the time/always | 43 (31.6) | 12 (27.9) | ||
overall | 134 (100.0) | 15 (11.2) | ||
Feeling at peace (n = 133) |
always/most of the time | 90 (66.2) | 3 (3.3) |
Chi2 (4) = 10.6 p = .031 |
sometimes | 22 (16.2) | 2 (9.1) | ||
occasionally/not at all | 21 (15.4) | 4 (19.0) | ||
overall | 133 (100.0) | 9 (6.8) | ||
Can share feelings as much as you want (n = 134) |
always/most of the time | 110 (80.9) | 1 (0.9) |
Chi2 (4) = 37.6 p < .001 |
sometimes | 10 (7.4) | 1 (10.0) | ||
occasionally/not at all | 14 (10.3) | 3 (21.4) | ||
overall | 134 (100.0) | 5 (3.7) | ||
As much information as wanted (n = 134) |
always/most of the time | 113 (83.1) | 2 (1.8) |
Chi2 (4) = 40.4 p < .001 |
sometimes | 13 (9.6) | 6 (46.2) | ||
occasionally/not at all | 8 (5.9) | 1 (12.5) | ||
overall | 134 (100.0) | 9 (6.7) | ||
Practical problems addressed (n = 132) |
none or addressed/mostly addressed | 96 (70.6) | 2 (2.1) |
Chi2 (4) = 17.1 p = .002 |
partly addressed | 24 (17.6) | 0 (0.0) | ||
hardly/not addressed | 12 (8.8) | 3 (25.0) | ||
overall | 132 (100.0) | 5 (3.8) |
* The Chi2-test was calculated for the five-point Likert scale without data reduction to the three-point format shown here; this is solely for the sake of clearer presentation
** For a more concise presentation of some results, levels of distress of specific symptoms are not presented as the original five-point scale but reduced to three categories