Table 6.
Subcategory | Representative Quotes |
---|---|
Engaging | “They kept my attention, so I don’t know what they did, if it’s the way they talked or if it was the drawings or I don’t know. It kept me glued.” “It all kinda spoke to me. I guess that I could kind of relate.” “It was actually a little better with cartoon figures than real people. Cuz then you could focus a little bit more on what they were saying.” |
Gentle | “It was a very cute way of promoting and explaining, you know, in a gentle way.” |
Easy-to-understand | “They was plain and clear. That’s what I like about the videos. They was on a level that everybody can understand.” “Pretty simple. And I understand it. It was sort of like in layman’s terms.” “I just feel like I got a lot more information that I needed to know… because I’m a visual person. So that helped me a lot.” |
Covers the basics | “It covers the basics, you know costs, recovery time, uh um, surgery time, you know, your support system in a nutshell. Covers everything.” “The videos were very short and precise, and they showed you every facet.” |
Manageable | “I thought it was comprehensive, but not overdone.” “I think it was perfect. Just enough. Put everything, summed it all up in a little video.” “I just think it just had enough to kind of put me at ease. I don’t think it was too much. I don’t think it was too little. I think it was just enough. I didn’t feel overwhelmed.” |
Lack of captions | “If there’s captioning for like the hearing impaired?” |
Missing content | “I want information to motivate me [to find a donor], to get out there and start asking.” “It didn’t speak about, uh, failures.” “I had questions on possibly getting my children tested.” “I want more explained about diet. I wanted to make sure that I’m not eating stuff that I’m not supposed to…that’s going to speed up the deterioration.” |
Hopeful about transplantation |
“My doctor said there ain’t no way. They not going to give it [a kidney] to you. Now it’s [videos] just flipped the script…I was like, it’s a chance you know. It gave me hope where I had lost it.” “I thought because of my age, you know, I’m 63…I just feel like now I might have a chance. I really thought at first that I probably wouldn’t be a good candidate for a transplant because of my age. And I’m not really well. I’m not gonna say my hope is bad, but I do have other problems. So, but now I feel like I do have a chance.” |
Self-confidence to get a transplant | “There was something that caught me there, and make me feel as though that I was like, ‘I can do this.’” “See. I was scared at first, but now I’m not scared. I’m determined.” |
Feeling support from transplant providers | “I think they’re supportive, they’re [transplant team] much more caring and compassionate, and they’re there for you, um, you know, they want a good outcome as well as I do.” “I do think it’s pretty cool that, you know, even after a transplant, that they got the pharmacist that links up and helps you, like understand the medications, and then they give you the medicine box and they set everything up. That gives the personal relief, like, you know, okay, this is what I gotta deal with.” |
Positive emotions about transplant | “So, I said yesterday [after watching the videos], maybe I will talk to my kidney doctors about the transplant. It was great because where I was thinking negative of transplant, and now I’m thinking positive of it.” “It was more enlightening. Transplant is not as gloomy though.” |
Deliver all pertinent videos as a whole | “You don’t ever give a person that’s seeking anything a chance to choose anything because he/she may choose something and then miss something on the other. You give them all the videos. Ask them to look at all the videos. And look at them very closely.” “The way I watched them, it seemed like they were placed in the way I needed to receive them.” “One piece. I didn’t wanna lose the train of thought, but I see where I could have gotten up and done something else. There was a little commercial in between.” |
Keep content under 30 minutes duration | “I wouldn’t go more than half an hour though. You go too long, I have to be honest, I get annoyed. You know, keep just concise and move it along.” “It was good to have it all in one block as long as I knew the overall time you would watch it.” “I feel like I got all the information I need right now, and I can become easily overwhelmed.” |
Provide option to re-watch | “You think you pick up most things that aren’t familiar, but when you go back over something, something else might come, so it’s good to reiterate things, you know, especially with me being mildly dyslexic.” |
Share to inform support persons | “I think all my supports would be interested to see what it’s about and see if they can get anything more about it.” |
Share to help family understand | “If my family wants to know some information, I would tell them to watch.” “My family, to give them more of an idea of what a transplant entailed.” “I think it might help my sisters to see it, you know, ‘cause they could probably get a better understanding, you know, what’s really going on.” |
Share to potential donors | “I would probably share them with my children [potential donors] so they can understand it more.” |
Share to educate peers | “To keep them informed as much as they can inform them about their disease and, uh, give them positive outlook on it.” |
Share with provider | “Actually, I wanted to, uh, see if I could get a copy of it because, uh, as I went back to dialysis and was doing some talking to the dietician, I couldn’t explain some of the things I saw in the video.” |
Declined sharing | “I don’t want my family to worry about me.” |