Table 1.
Annual and Cumulative Data from Newborn Screening Continuity Clinics 2018–2021.
| Category | Year | |||
|---|---|---|---|---|
| 2018 | 2019 | 2020 | 2021 | |
| Annual number of endorsed newborns (referred from NSCs) | 459 | 476 | 1171 | 643 |
| Cumulative endorsed newborns (long-term care monitoring) | 4229 | 4705 | 5876 | 6519 |
| Annual number of expired cases (died while in long-term care) | 10 | 22 | 46 | 17 |
| Annual number discharged (diagnosed clinically normal) | 17 | 18 | 29 | 8 |
| Actual newborn census [endorsed − (expired + discharged)] | 3991 | 4427 | 5523 | 6141 |
| Number contacted (contact with patient made within 6 months) | 2819 | 3107 | 4138 | 4717 |
| Percentage contacted [(number contacted/actual census) × 100%] | 70.6% | 70.2% | 74.9% | 76.8% |
| Annual unresponsive patients (patient contact lost for over 6 months) | 304 | 148 | 65 | 39 |