Table 15.

Guideline Recommendations for psychosocial needs.

Psychosocial needs
No	Recommendations	Strength
1	NF1 has a significant effect on psychosocial and neuropsychological functioning and impacts on quality of life. It is strongly advised to have a psychologist as a member of the multidisciplinary team, to support patients and families when making decisions about diagnosis, management and treatment.	weak
2	Psychosocial wellbeing and neuropsychological functioning should be addressed at each clinic visit. These may include assessing e.g. anxiety and depression, coping mechanisms and patient reported outcomes.	weak
3	The information and guidance for patients with NF1 and family members should be age-appropriate and tailored to the needs of the individual, potential interventions to reduce the impact of NF1 on psychosocial functioning and quality of life should be included.	weak

Note. NF1 = Neurofibromatosis type 1.