Table 2.
Patient demographics.
| 2020 Survey (n = 110) | N | 2021 Survey (n = 124) | N |
|---|---|---|---|
| Individual/parent/carer of someone with OI | |||
| Individual with OI | 80 | Individual with OI | 104 |
| Parent of someone with OI | 15 | Parent of someone with OI | 15 |
| Parent of someone with OI and individual with OI | 12 | Carer of someone with OI | 5 |
| Parent and carer of someone with OI | 2 | ||
| Other | 1 | ||
| Country of residence | |||
| England | 85 | England | 79 |
| Scotland | 11 | Other | 28* |
| Northern Ireland | 6 | Scotland | 10 |
| Wales | 4 | Ireland | 4 |
| Ireland | 2 | Northern Ireland | 2 |
| No response | 2 | Wales | 1 |
| Severity of OI | |||
| Not asked in this survey | Mild | 36 | |
| Moderate | 47 | ||
| Severe | 36 | ||
| Unsure | 5 | ||
| Age of individual | |||
| Not asked in this survey | Ages <15 | 11 | |
| Ages 18–30 | 12 | ||
| Ages 31–50 | 54 | ||
| Ages 50–64 | 39 | ||
| >Ages 64 | 8 | ||
*Including Norway, Sweden, Denmark, Netherlands, Malta, Finland, India, USA, Belgium, South Africa.