Table 1.
Patient and caregiver characteristics (n = 21)
| Socio-demographic characteristic | N (%) |
|---|---|
| Gender | |
| Man | 13 (61.9) |
| Woman | 8 (38.1) |
| Age (years) | |
| Under 40 | 1 (4.8) |
| 40–64 | 13 (61.9) |
| 65 or older | 7 (33.3) |
| Education | |
| Less than Grade 12 | 1 (4.8) |
| High school diploma | 7 (33.3) |
| College, trade, university | 13 (61.9) |
| Employment | |
| Retired | 8 (38.1) |
| Disability | 6 (28.6) |
| Not employed | 5 (23.8) |
| Employed full or part time | 2 (9.5) |
| Primary hemodialysis location (population) | |
| Large urban (100,000 and over) | 10 (47.6) |
| Medium urban (30,000–99,999) | 4 (19.1) |
| Small urban (1000–29,999) | 7 (33.3) |
| Clinical characteristic* | N (%) |
|---|---|
| Cause of kidney failure | |
| Diabetes | 6 (28.6) |
| High blood pressure | 1 (4.8) |
| Glomerulonephritis | 1 (4.8) |
| Other (e.g., sepsis, obstruction) | 12 (57.0) |
| Unknown or unsure | 1 (4.8) |
| Length of time with kidney disease (years) | |
| Less than 5 | 7 (33.3) |
| 5–9 | 6 (28.6) |
| 10–20 | 5 (23.8) |
| More than 20 | 3 (14.3) |
| Length of time on hemodialysis (years) | |
| Less than 1 | 6 (28.6) |
| 1–2 | 5 (23.8) |
| 3–5 | 3 (14.3) |
| More than 5 | 7 (33.3) |
| Experience with other kidney failure treatments | |
| Yes | 7 (33.3) |
| Peritoneal dialysis | 4 (19.1) |
| Home hemodialysis | 2 (9.5) |
| Transplant | 1 (4.8) |
| No | 14 (66.7) |
| PROM allocation | |
| EQ-5D-5L | 9 (42.9) |
| IPOS-Renal | 8 (38.1) |
| Both | 4 (19.0) |
IPOS, Integrated palliative care outcome scale; PROM, patient-reported outcome measure
*The one participating caregiver reported clinical characteristics of her spouse who did not participate in the study