Table 4.
Impact | Patients (n = 2) n |
Caregivers (n = 28) n |
Total (N = 30) n (%) |
---|---|---|---|
Self-consciousness | 1 | 14 | 15 (50.0) |
Embarrassment | 2 | 12 | 14 (46.7) |
Worry about others noticing or commenting | 2 | 8 | 10 (33.3) |
Avoiding certain clothing (e.g., shorts or bathing suits) | 2 | 6 | 8 (26.7) |
Physical activities | 1 | 5 | 6 (20.0) |
Worry about contagiousness | 1 | 1 | 2 (6.7) |
Teased or treated meanly | 1 | 2 | 3 (10.0) |
Bath time | 1 | 1 | 2 (6.7) |
Daily activities | – | 2 | 2 (6.7) |
Sleep a | – | 1 | 1 (3.3) |
Interpersonal or social relationships a | 1 | 1 | 2 (6.7) |
Work a | 1 | – | 1 (3.3) |
aImpact not probed during the interview but spontaneously reported by participants