Table 1.
General characteristics of the study population (N = 17).
| Age at incident (months) | 98 [23.5–21.1] |
|---|---|
| Age groups (%) | |
| Infant (1 to 12 months) | 2/17 (11.8%) |
| Toddler (12 months to <6 years) | 5/17 (29.4%) |
| Schoolchild (≥6 years to <12 years) | 3/17 (17.6%) |
| Adolescents (≥12 years to <18 years) | 3/17 (17.6%) |
| Adults with pedatric diseases and needs (≥18 years) | 4/17 (23.6%) |
| Sex (male) | 8/17 (47.0%) |
| Duration of SHPC treatment (months) | 7 [2.5–14.0] |
| Underlying diagnosis: | |
| Neuropediatric | 9/17 (52.9%) |
| Oncologic | 3/17 (17.6%) |
| Perinatal asphyxia | 2/17 (11.8%) |
| Metabolic disorders | 2/17 (11.8%) |
| Sequelae of severe trauma | 1/17 (5.9%) |
| Migrant background (%) | 5/17 (29.4%) |
| Feeding tube (%) | 12/15 (80.0%, data of two patients are missing) |
| Implanted percutaneous central line (%) | 5/15 (33.3%, data of two patients are missing) |
| Tracheostoma (%) | 4/15 (26.7%, data of two patients are missing) |
Note. Data are shown as absolute numbers and percentages or as a range in the case of continuous data. SHPC, Specialized home palliative care.