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. 2023 Jan 26;18:17. doi: 10.1186/s13023-022-02601-5

Table 2.

Hours of practical and emotional care per day

Practical carea
Total sample N Mean Median SD
36 5.79a 3.00 6.22
By ambulatory status N Mean Median SE Lower bound 95% CI Upper bound 95% CI t p
No assistance walking 12 2.64 2.00 0.54 1.45 3.83 Ref
Assistance with walking 21 6.88 4.00 1.41 3.95 9.82 − 2.21 0.03
Wheelchair/bedridden 3 10.67a 5.00 6.69 − 18.13 39.46 − 2.56 0.02
Emotional supporta
Total sample N Mean Median SD
35* 4.08 2.00 6.13
By ambulatory status N Mean Median SE Lower bound 95% CI Upper bound 95% CI t p
No assistance walking 12 3.56 1.07 1.49 0.28 6.84 Ref
Assistance with walking 20 4.74 2.00 1.58 1.43 8.05 − 0.50 0.62
Wheelchair/bedridden 3 1.76a 1.00 1.14 − 3.13 6.66 0.57 0.57

aThe patient-caregiver (n=1) reported providing 24 hours of practical care and 4 hours of emotional support per day

*Sample size is 1 less than elsewhere because the emotional support item was added after the pilot