Table 1.
Characteristics of participants
| ADNI | ADNI-BHR | ||||
|---|---|---|---|---|---|
|
| |||||
| Variable | Completed in-clinic ECog 6 mo. Apart N=472 |
Invited N=603 |
Non-Consented N=493 |
Consented N=110 |
Completed ECog online & in-clinic N=94 |
| Demographics | |||||
| Age years, median (IQR) | 80 (64-97) | 76 (70-82) | 76 (70-82) | 76 (70-81) | 75 (71-80) |
| Education years, median (IQR) | 16 (11-20) | 17 (15-18) | 17 (15-18) | 17 (16-19) | 18 (16-19) |
| Female (%) | 233 (49%) | 316 (52%) | 250 (51%) | 66 (60%) | 57 (61%) |
| Race | |||||
| White (%) | 435 (92%) | 542 (90%) | 443 (90%) | 99 (90%) | 89 (95%) |
| Black or African American (%) | 23 (5%) | 31 (5%) | 23 (5%) | 8 (7.3%) | 3 (3%) |
| Asian (%) | 6 (1.4%) | 14 (2.3%) | 12 (2%) | 2 (1.8%) | 1 (1%) |
| More than one race (%) | 5 (1%) | 13 (2.2%) | 12 (2%) | 1 (0.9%) | 1 (1%) |
| American Indian or Alaskan Native (%) | 1 (0.2%) | 1 (0.2%) | 1 (0.2%) | - | - |
| Native Hawaiian or Other Pacific Islander (%) | 1 (0.2%) | - | - | - | - |
| Unknown | 1 (0.2%) | 2 (0.3%) | 2 (0.4%) | - | - |
| Ethnicity | |||||
| Hispanic or Latino (%) | 15 (3%) | 26 (4.3%) | 23 (5%) | 3 (2.7%) | 2 (2%) |
| Not Hispanic or Latino (%)) | 454 (96%) | 575 (95.4%) | 468 (95%) | 107 (97.3%) | 92 (98%) |
| Unknown (%) | 3 (0.6%) | 2 (0.3%) | 2 (0.4%) | - | - |
| Diagnosis | |||||
| Cognitively Normal (%) | 253 (54%) | 357 (59.2%) | 274 (55.6%) | 83 (75.5%)) | 72 (77%) |
| Mild Cognitive Impairment (%) | 219 (46%) | 202 (33.5%) | 177 (36%) | 25 (22.7%) | 21 (22%) |
| Dementia (%) | - | 44 (7.3%) | 42 (8.5%) | 2 (1.8%) | 1 (1%) |
| Computer Confidence* | |||||
| Usually Needs Help (%) | - | - | - | - | 3 (4%) |
| Depends on Task (%) | - | - | - | - | 34 (43%)) |
| Confident (%) | - | - | - | - | 43 (54%) |
*
Missing values in the Computer Confidence variable
†
Abbreviations: IQR, interquartile range; ADNI, Alzheimer’s Disease Neuroimaging Initiative; BHR, Brain Health Registry; mo., months
‡
Data presented as median (IQR) or number (%)