Table 4:
Representative quotations of patients with endometrial cancer on follow-up from distress screening
| Descriptive Quote | Participant |
|---|---|
|
| |
| Perceived Use of the NCCN DT & PL | |
|
| |
| I was just filling it out because I was asked to fill it out. […] Maybe something on top where you first start reading that “we’re here to help” kind of thing. Right, so they know when they’re filling it out, that they’re not just checking off some boxes. It really means something | White; 57-year-old, low distress |
| I kind of thought that, that’s what the purpose was in a way, that it would be a way for people to get help with things they needed help with. | Black; 55-year-old; low distress |
|
| |
| Changing Score | |
|
| |
| There might have been sometimes when I was on the line that whether or not something was a concern or the number, the distress number, that I might would have gone on the side of marking something as a concern. | White; 54-year-old; low distress |
| I don’t think I would fill it out any different, because […] to me when you’re going through what you’re going through, they offer, they should offer support. I mean you know that would be an option | White; 69-year-old; low distress |
|
| |
| Clarity and Direct Support | |
|
| |
| If you will put on here, “these services are available to you if you, you know, are willing to say yes you need them and want them.” I would think the woman would answer honestly | White; 77-year-old; high distress |
| I think you would concentrate more on the form if you knew [it was used to determine support services]. | White; 74-year old; Low Distress |
| I think that’s really important [to know about the cut off level of 4], because I have to be honest with you. I’ve gone to see primary care doctors, and they have a little questionnaire similar to this […] I filled it out but you know what I never heard, nobody ever, nobody has ever addressed that. […] if you’re going to ask me these questions, please follow up you know. | White; 76-year-old; high distress |
|
| |
| Availability of Support | |
|
| |
| The main thing is […] make sure they have Counselors […] or people that we can talk to because that’s, that’s one good thing to get it out, you know. | Black,; 55-year-old; high distress |