Table 2.
Health-related Quality of Life and Perceived Burden scores at baseline and 5 years
| Baseline (N=46) | 5 years (N=46) | |||||||
|---|---|---|---|---|---|---|---|---|
| Variables | N | Mean (SD) | Median (min–max) | N | Mean (SD) | Median (min–max) | MD | P* |
|
Health-related Quality of Life (SF-12) | ||||||||
| General health | 44 | 63.25 (24.22) | 60 (0–100) | 46 | 60.43 (17.82) | 60 (25–100) | −2.82 | 0.57 |
| Physical functioning | 44 | 84.47 (26.17) | 100 (0–100) | 46 | 74.45 (30.50) | 87.50 (0–100) | −10.02 | 0.04 |
| Role physical | 44 | 73.54 (26.89) | 75 (0–100) | 46 | 66.30 (24.28) | 62.50 (0–100) | −7.24 | 0.08 |
| Role emotional | 44 | 74.13 (25.35) | 75 (12.5–100) | 46 | 66.03 (23.96) | 62.50 (12.5–100) | −8.1 | 0.01 |
| Bodily pain | 44 | 81.98 (19.15) | 75 (25–100) | 46 | 75.00 (27.39) | 75.00 (0–100) | −6.98 | 0.09 |
| Mental health | 44 | 59.30 (23.63) | 62.50 (0–87.50) | 46 | 64.67 (20.63) | 62.50 (12.50–100) | 5.37 | 0.12 |
| Vitality | 44 | 61.04 (24.58) | 75 (0–100) | 46 | 50.54 (27.63) | 50.00 (0–100) | −10.5 | 0.02 |
| Social functioning | 44 | 70.93 (27.23) | 75 (0–100) | 46 | 72.83 (22.25) | 75.00 (25–100) | 1.90 | 0.85 |
|
Perceived Burden (Zarit) |
44 | 18.26 (12.94) | 18 (0–48) | 18¥ | 14.76 (12.63) | 13 (0–34) | −3.50 | 0.41 |
MD mean difference. MD was calculated as the difference between 5 years’ score and baseline score
*p from Wilcoxon rank test, ¥ caregivers still in a caregiving relationship, significant results are highlighted in bold