Table 2.

Integrative review inclusion and exclusion criteria

Inclusion	Exclusion
Papers exploring healthcare provider and/or patient families’ experiences of critical congenital heart disease^ diagnosis and/or management	Papers not including any element of healthcare provider and/or patient families’ experiences of critical congenital heart disease^ diagnosis and/or management
Paper describes majority of participants (= > 50%) with a diagnosis of critical congenital heart disease	Single case study or minority of participants with critical congenital heart disease
English language version available	No English language version available
Any children/fetuses with comorbidities (including genetic diagnoses and syndromes)	Infants with acquired cardiac disease
Empirical study	Review articles
Papers from Jan 1990 to July 2021	Experiences of adult or adolescent patients with CCHD (> = 10 years of age)
Full text available	Papers prior to 1990
Peer-reviewed studies	Full text unavailable
	Dissertation studies not peer-reviewed

^Heart defects classified as critical congenital heart disease include: aortic interruption or atresia or hypoplasia; coarctation or hypoplasia or the aortic arch; D-transposition of the great arteries; double-outlet right ventricle; Ebstein’s anomaly; hypoplastic left heart syndrome; single ventricle; pulmonary atresia intact septum; tetralogy of Fallot; total anomalous pulmonary venous connection; tricuspid stenosis and atresia, and truncus arteriosus