Table 1.

Themes in three major surveys and two large sub-studies

Demographic and social characteristics and other	Health behaviours	General health-related data
Baseline collection 2006–2009 (N = 267 357)
Date of birth	Smoking	Disease and surgical history
Education	Alcohol	Family history of illness
Income	Physical activity	Medication
Marital status	Dietary information	Functional capacity
Country of birth	Sleep habits	Psychological distress
Retirement work		Cancer screening history
Social connectedness		Falls
Ancestry		Oral health
		Skin pigment/response to sun
		Reproductive history
		Incontinence
		Prostate symptoms
Wave 2: 2012–2015 (N = 142 548)
Household	Sun protection	Pain
Housing	Sedentary behaviour	Sexual function
Carer responsibilities	End-of-life planning	Allied healthcare, telehealth use
Blood donations	Bowel cancer screening	Irritability
Means of transport	Vaccination—flu, shingles, whooping cough	Healthcare continuity, accessibility, patient experiences
Experience of violence
Wave 3: 2018–2020 (N = 97 302)
New housing questions	E-cigarettes	Blood transfusion
Family history	Quitting smoking	Life satisfaction
Financial stress	Binge drinking	Ability to participate
Use of technology		Aspirin use
		Out-of-pocket health expenses
		Loneliness
		Balance
Social, Economic and Environmental Factors (SEEF) 2010 (N = 60 404)
Sexuality		Support required for activities
Religion/beliefs		Fractures
Retirement		Ability to manage healthcare
Social support		Access to healthcare
Major life events
Financial stress, personal income, dependents
COVID Insights: 2020–2022—five surveys (N = 32 116 enrolled)
Financial security and impact of COVID	Lifestyle behaviour: changes in physical activity, alcohol, sedentary behaviour	COVID exposure, symptoms, infections, testing
Information sources	COVID protective behaviours	Health service use including telehealth, allied health, psychological care Missed/delayed healthcare: screening, bloods, medications Impact of missed care
Health literacy	COVID vaccination—attitudes, perceptions, intentions	Mental health measures:  De Jong Loneliness scale  Kessler psychological distress  Duke Social Support Index  Uncertainty about the future  Concern about COVID infection  COVID impact on mental health  Resilience index
Major life events	Blood donations	Overall health/quality of life
Work during COVID		Cancer diagnoses and treatment
Carer responsibilities