Table 3.
Median scores for “daily life” subdimensions as reported by caregivers from their own perspective (N=35) and patients on behalf of their caregivers (N=115; see question 26 from Multimedia Appendix 2).
| Dimension and subdimension | Patients (n=115), median (IQR) | Caregivers (n=35), median (IQR) |
P value |
| Physical functioning and well-being | 9.4 (6.2-10.0) | 8.7 (6.7-10.0) | —a |
| Emotional well-being | 9.3 (6.4-10.0) | 8.8 (6.8-10.0) | — |
| Family life | 8.8 (6.2-10.0) | 8.9 (6.0-10.0) | — |
| Romantic relationship | 6.9 (3.5-9.6) | 7.4 (3.8-9.6) | — |
| Professional life | 4.5 (2.2-7.0) | 7.2 (3.3-9.6) | .005 |
| Purchasing power | 7.5 (4.8-10.0) | 7.7 (4.9-9.8) | — |
aNot determined.