Table 6.
Support and Advocacy Organizations for Neurofibromatosis Type 1 (NF1)
| Organization | Access |
|---|---|
| B The Difference, The Brandon Merritt Charitable Foundation | www.bthedifference.org |
| Children’s Tumor Foundation | www.ctf.org |
| Littlest Tumor Foundation | www.littlesttumor.org |
| Neurofibromatosis Midwest | www.nfmidwest.org |
| Neurofibromatosis Network - regional groups include: | www.nfnetwork.org |
| ● NF Arizona/Southwest | ● www.nfnetwork.org |
| ● NF California | ● www.nfcalifornia.org/ |
| ● NF Central Plains | ● www.nfcentralplains.org/ |
| ● NF North Central | ● www.nfnorthcentral.nfnetwork.org/ |
| ● NF Northeast | ● www.nfnortheast.org |
| ● NF Michigan | ● www.nfmich.org/ |
| NF Collective | www.nfcollective.org |
| NF Team Foundation | www.thenfteam.org |
| Texas Neurofibromatosis Foundation | www.texasnf.org |
Notes: Several organizations offer information and support for individuals and families affected by NF1. Services provided may include local or regional support and activities, scholarships and funding, and fundraising for NF awareness and research.