Table 1.

CRISIS AFAR Parent Baseline Survey v0.5.1 (3–21 years): Domains and Items

	Shared with CRISIS					AFAR-specific
Domain	Background	Coronavirus/COVID-19 Health/Exposure Status	Life Changesd	COVID-19 Worriesd	Behavior/ Mediad	Adaptive Living Skillsc,d	RRBc,d	Co-Occurring Problem Behaviorb,c,d	Servicesc
Item Descriptions	Age, sex at birth, gender	Any family impact	Food insecuritya	Worried self, other	Bed time weekdays, weekends	Entertains self	Repetitive motor mannerisms	Hyperactivity, difficulty staying on task	School
	Ancestry	Family member COVID-19 diagnosed	Financial difficulty	Physical worries	Falling and staying asleepc	Structures time	Sensory seeking	Getting angry/ losing temper	Outside school
	Health insurance, government assistance	Last 2-week exposure, symptom count	Housing instability concern	Reading and talkinga	Hours of sleep weekdays, weekends	Self-care	Rituals or routines	Verbal aggression
	Urbanicity, household	School closed, job loss	Positive changes	Mental worries	Exercisea, time outdoors	Mealtime Independence	Insist others maintain routines	Physical aggression
	Essential workers		Time outside home		TV and media, video games		Highly restricted/ strong interest	Deliberately injuring self
	Child’s physical health, neuropsychiatric diagnosesa		Difficulty distancing		Social mediab,c		Adjustment to changes	Disobedient/ arguing
	Current grade, level/employment,a		Event cancellation stressa		Tech to engage with familyb,c			Crying easily
	Educational settingc		Stay-at-home stress		Tech to engage with peersb,c			Worry social situations
	Respondent relation to child, age, and educationa		Hopefully enda					Worry separation from caregiver
	Other caregiver’s educationa							Fearful
# of items	20	6	7	5	13	4	6	11	7
Time targeted	At time of completion	Last 2 Weeks			Three months prior to pandemic and last 2 weeks				Pre-pandemic and current

CRISIS AFAR retained CRISIS key content and structure (e.g., last 2 weeks for COVID-19 Impact, COVID-19 Worries and Life Changes domains, the 3 months prior to the pandemic start in the respondent’s geographical area and last 2 weeks for the other Likert-scale items).a: Item slightly reworded; b: Item not asked for children younger than 5 years; c: Domain/item added in CRISIS AFAR. See Main Text and Additional File 1: Methods for more details on the adaptation process, as well as Additional File 1: Methods and Tables S5-S6 for the AFAR factor structure; d: Likert-scale items. See http://www.crisissurvey.org/crisis-afar/ for complete survey