TABLE 1.
Questions and responses for 18 quality of life (QoL) questions that elicited a notable result (n = 155)
| Question | Median (range) | Scale | |
|---|---|---|---|
| EuroQoL‐5D‐5L | |||
| 1. | Your own health state today | 75 (15–100) | 0–100: 0 = The worst health you can imagine, 100 = The best health you can imagine |
| 2. | Mobility | 1 (1–4) | 1–5: 1 = I have no problems in walking about, 5 = I am unable to walk about |
| 3. | Usual activity | 1 (1–5) | 1–5: 1 = I have no problems doing my usual activities, 5 = I am unable to do my usual activities |
| 4. | Pain/discomfort | 2 (1–5) | 1–5: 1 = I have no pain or discomfort, 5 = I have extreme pain or discomfort |
| HADS | |||
| 5. | HADS anxiety | 5 (0–19) | 0–21: 0–7 = Normal, 8–10 = Borderline abnormal (borderline case), 11–21 = Abnormal (case) |
| 6. | HADS depression | 4 (0–15) | 0–21: 0–7 = Normal, 8–10 = Borderline abnormal (borderline case), 11–21 = Abnormal (case) |
| EORTC QLQ C30 | |||
| 7. | How would you rate your overall quality of life during the past week? | 5 (1–7) | 1–7: 1 = Very poor, 7 = Excellent |
| 8. | How would you rate your overall health during the past week? | 5 (2–7) | 1–7: 1 = Very poor, 7 = Excellent |
| 9. | Have you had trouble sleeping? | 2 (1–4) | 1–4: 1 = Not at all, 4 = Very much |
| 10. | Has your physical condition or medical treatment interfered with your social activities? | 2 (1–4) | 1–4: 1 = Not at all, 4 = Very much |
| 11. | Were you tired? | 2 (1–4) | 1–4: 1 = Not at all, 4 = Very much |
| 12. | Did you need to rest? | 2 (1–4) | 1–4: 1 = Not at all, 4 = Very much |
| 13. | Have you felt weak? | 2 (1–4) | 1–4: 1 = Not at all, 4 = Very much |
| BIPQ | |||
| 14. | How much control do you feel you have over your illness? | 4 (0–10) | 0–10: 0 = Absolutely no control, 10 = Extreme amount of control |
| 15. | How well do you feel you understand your illness? | 8 (0–10) | 0–10: 0 = Do not understand at all, 10 = Understand very clearly |
| 16. | How concerned are you about your illness? | 6 (0–10) | 0–10: 0 = Not at all concerned, 10 = Extremely concerned |
| 17. | How much do you experience symptoms from your illness? | 3 (0–10) | 0–10: 0 = No symptoms at all, 10 = Many severe symptoms |
| 18. | How much does your illness affect your life? | 5 (0–10) | 0–10: 0 = No affect at all, 10 = Severely affects my life |