Table 1.
Descriptive Statistics of Demographics and Clinical Variables
| All | PVP (n = 59) | Control (n = 53) | |
|---|---|---|---|
|
| |||
| M (SD, Range) or Frequency (Percentage*) | |||
| Demographics | |||
| Age of caregiver at visit | 36.1 (7.7, 20.4–63.1) | 36.4 (7.4, 20.4–53) | 35.8 (8.2, 22.8–63.1) |
| Sex | |||
| Female | 108 (96%) | 58 (98%) | 50 (94%) |
| Male | 4 (4%) | 1 (2%) | 3 (6%) |
| Race/ethnicity | |||
| White, non-Hispanic | 79 (74%) | 46 (81%) | 33 (66%) |
| African American/Black, non-Hispanic | 12 (11%) | 7 (12%) | 5 (10%) |
| Hispanic/Latino(a) Only | 6 (6%) | 2 (4%) | 4 (8%) |
| Asian | 3 (3%) | 1 (2%) | 2 (4%) |
| American Indian, Native American, or Alaska Native | 4 (4%) | 0 (0%) | 4 (8%) |
| Other | 3 (3%) | 1 (2%) | 2 (4%) |
| Child’s insurance status | |||
| No insurance | 3 (3%) | 2 (3%) | 1 (2%) |
| Has insurance | |||
| Private | 39 (35%) | 20 (34%) | 19 (36%) |
| Medicaid | 58 (52%) | 29 (49%) | 29 (55%) |
| Military | 8 (7%) | 4 (7%) | 4 (8%) |
| Private and Medicaid+ | 3 (3%) | 3 (5%) | 0 (0%) |
| Military and Medicaid+ | 1 (1%) | 1 (2%) | 0 (0%) |
| Education | |||
| High school or less | 30 (29%) | 14 (25%) | 16 (33%) |
| Some post-high school training | 36 (35%) | 15 (27%) | 21 (44%) |
| Bachelor’s degree | 24 (23%) | 16 (29%) | 8 (17%) |
| Master’s degree or above | 14 (13%) | 11 (20%) | 3 (6%) |
| Marital status | |||
| Married | 66 (65%) | 34 (62%) | 32 (68%) |
| Living with partner | 7 (7%) | 5 (9%) | 2 (4%) |
| Divorced | 5 (5%) | 3 (5%) | 2 (4%) |
| Separated | 3 (3%) | 2 (4%) | 1 (2%) |
| Widowed | 1 (1%) | 1 (2%) | 0 (0%) |
| Single, never married | 20 (20%) | 10 (18%) | 10 (21%) |
| Work for pay | |||
| Yes | 63 (61%) | 33 (59%) | 30 (63%) |
| No | 41 (39%) | 23 (41%) | 18 (38%) |
| Income | |||
| $5,000 – $24,999 | 33 (33%) | 17 (30%) | 16 (36%) |
| $25,000 – $59,999 | 26 (26%) | 14 (25%) | 12 (27%) |
| $60,000 – $119,999 | 24 (24%) | 13 (23%) | 11 (24%) |
| $120,000 or more | 18 (18%) | 12 (21%) | 6 (13%) |
| Age of child at visit | 5.12 (4.04, 0.4–16.0) | 4.4 (3.8, 0.4–15.0) | 5.9 (4.2, 0.4–16.0) |
| Clinical Factors | |||
| Clinic | |||
| Genetics | 100 (89%) | 52 (88%) | 48 (91%) |
| Neurology | 12 (11%) | 7 (12%) | 5 (9%) |
| Study site | |||
| Mission | 34 (30%) | 18 (31%) | 16 (30%) |
| UNC | 78 (70%) | 41 (69%) | 37 (70%) |
*
Percentages were calculated after excluding missing data.
+
Counted as Medicaid in analyses