Table 2.
Non-adoption, Abandonment, Scale-up, Spread, and Sustainability (NASSS) framework: contextual factors that influence the implementation of patient portals.
| NASSS domain and subdomain and contextual factors (namely, facilitators and barriers) | Acute care hospitals | Mixed health care setting | Older adults (aged >60 years) | ||||||
| 1. Condition | |||||||||
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What is the nature of the condition or illness? | ||||||||
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Facilitators | |||||||
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Greater disease severity | —a | [24] | — | |||
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Chronic disease (and associated well-established case management programs) | — | [21,23] | — | |||
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Barriers | |||||||
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Severity and circumstances of illness (eg, reduced involvement in decision-making and fewer questions) | [20] | [24] | — | |||
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Relevant sociocultural factors and comorbidities | ||||||||
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Facilitators | |||||||
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Higher socioeconomic status, female sex, younger age, White ethnicity, and younger senior citizens | — | [23,24] | [18] | |||
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Disease-specific portal | — | [24] | — | |||
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Barriers | |||||||
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Lower socioeconomic status, male gender, older age, and non-White ethnicity (impacts enrollment and engagement) | [12,20] | [24] | — | |||
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Diversity of older adults (not well understood) | — | — | [19] | |||
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Low health literacy and numeracy (and understanding of health literacy) | — | [23,24] | [19] | |||
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Lack of digital access | — | [23] | [18] | |||
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Insurance status | [12] | — | — | |||
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Comorbidities such as vision and hearing loss, decreased dexterity and mobility, and declining cognitive function | — | — | [18,19] | |||
| 2. Technology | |||||||||
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Key features | ||||||||
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Facilitators | |||||||
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Information and identity authentication and protection | — | [23,25] | — | |||
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Usability (eg, set-up, interface design, simple displays, text visibility, buttons, patient-friendly content, ease of navigation, personalized interface, and reminders to view) | [12,17,20] | [21,24,25] | [18] | |||
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Functionality (eg, communication with providers; access to reliable, timely and comprehensive personal medical information; content in minority languages; and inbuilt system alerts) | [17] | [23,24] | [18] | |||
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Accessibility (eg, adding mobile access and providing on-site kiosks) | [12] | [21,23] | — | |||
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Participatory and iterative design approaches | — | [23,24] | — | |||
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Iterative user evaluation (eg, patients and providers) | [12] | — | — | |||
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Definition of minimum data set to plan care and continuously evaluate treatment | — | [25] | — | |||
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Barriers | |||||||
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Patients’ security and privacy concerns (eg, control over access) | [17,20] | [21-24] | [18] | |||
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Providers’ concerns about sharing patient information | — | [21,25] | — | |||
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Usability (eg, interface design, technical glitches, log-on, navigation, accessibility of information for patients, and printing and using information) | [17] | [21,23,24] | [18,19] | |||
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Establishing a trade-off among security measures, user friendliness, and flexibility | — | [23] | — | |||
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Functionality (eg, differing information needs of patients and providers; differing patient preferences over data content and input; diversity of health data types and formats and portal ability to handle the diversity of health data types and formats; data transparency—what data are released and to whom and how they are released; language used; and level of features [eg, reminders, dictionary, lifestyle advice, print capability, and user voice command]) | [17] | [23-25] | [18] | |||
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Accessibility (eg, computer and internet access and secure and stable infrastructures) | — | [21-23] | [18] | |||
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Type of knowledge in play | ||||||||
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Facilitators | |||||||
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Data set is comprehensive, reliable, complete, understandable, and valid | — | [25]] | — | |||
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Audit trail for revisions to data | — | [23] | — | |||
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Barriers | |||||||
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Concerns about patients’ ability to interpret test results and deal with sensitive information without professional support or interpretation | [17,20] | [21,23,24] | [18] | |||
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Real-time (release of) information without real-time support | [20] | — | — | |||
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Providers’ concerns about the reliability of patient-generated data (as basis for clinical decisions) | [20] | [23] | — | |||
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Knowledge to use | ||||||||
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Facilitators | |||||||
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Patient training and technical support (eg, videos, handbooks, hotline, and workshops) | [12] | [23] | [18] | |||
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Training for providers | — | [23] | — | |||
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Barriers | |||||||
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Quality of patient training | [12] | — | — | |||
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Patients’ level of technology literacy (eg, perceived and actual skill and computer anxiety) | [12] | — | [18] | |||
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Technology supply model | ||||||||
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Facilitators | |||||||
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Portals that integrate into preexisting systems | [17] | — | — | |||
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Interoperability (eg, information exchange and sharing) | — | [25] | — | |||
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Barriers | |||||||
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Interoperability (eg, achieving appropriate data exchange among systems) | — | [21,23] | — | |||
| 3. Value proposition | |||||||||
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Supply-side value | ||||||||
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Facilitators | |||||||
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Facilitates the processing of payments by insurance companies | — | [25] | — | |||
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Trial period before purchase (ie, to test usability and estimate financial and organizational impact) | — | [23] | — | |||
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Positive return on investment and impact on charges and costs | — | [21] | — | |||
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Barriers | |||||||
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Trade-off among the type of architecture, responsiveness to local needs, and implementation time and cost (ie, decentralized and more expensive but more responsive and shorter implementation time) | — | [25] | — | |||
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Establishing sound business case (eg, no standardized evaluation frameworks, no reimbursement structures for electronic services, lack of evidence of cost savings, and lack of financial sustainability) | — | [23,24] | — | |||
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Demand-side value | ||||||||
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Facilitators | |||||||
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Satisfies patients’ need for information; facilitates knowledge retention, understanding, and engagement in care by patient; sense of empowerment and control; feeling of being better prepared; and perceived usefulness (eg, aids self-management, utility features, and information in one place) | [17,20] | [21,22,24,25] | [18,19] | |||
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Provide communication route with professionals between clinic rounds (eg, patient driven communication) | [17] | [21,24] | [18] | |||
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Assists (verbal) interactions or appointments with professionals and patient-provider communication | [17,20] | [21,22,24,25] | [18] | |||
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Access to information facilitates the development of trust in diagnosis, investigations, treatment, and professionals (eg, relationships) | [20] | [21] | [19] | |||
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Helps inaccuracies in EHRb to be identified (eg, detection of errors and patient safety) | [17,20] | [24] | — | |||
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Contributes to enhanced discussions with patients and aids communication | [17] | [21,24,25] | — | |||
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Prevents misunderstandings and builds trust (ie, careful and clear recording of information) | [20] | [21] | — | |||
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Usefulness and time efficiency (ie, clear recording prevents the need to repeat information and aids interprofessional communication) | — | [21,25] | — | |||
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Helps improve care (eg, planning and continuous evaluation of treatment, adherence, patient satisfaction and engagement, reduced patient anxiety, timely decision-making) | — | [24,25] | — | |||
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Barriers | |||||||
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Patients perceive extra responsibility for finding errors or poor outcomes | [20] | — | — | |||
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Patients’ concern about threat to face-to-face communication with professionals | [20] | — | [18] | |||
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Patients’ do not see value or usefulness (eg, lack awareness of features) | [12] | [21,23,24] | [19] | |||
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Patient views about “user fee for use” | — | — | [19] | |||
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Professionals’ concern that messaging may adversely impact verbal communication | [17] | — | — | |||
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Professionals do not perceive usefulness | — | [21] | — | |||
| 4. Adopter system | |||||||||
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Changes in staff roles, practices, and identities | ||||||||
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Facilitators | |||||||
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Accepting of collaborative versus expert-led care | [20] | — | — | |||
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Professionals’ positive level of engagement, knowledge, and confidence in portal systems | — | [24] | — | |||
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Barriers | |||||||
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Less accepting of collaborative versus expert-led care and do not wish to cede autonomy to patients | [20] | [23] | — | |||
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Professionals need to support patients to interpret and emotionally deal with the information in portals | [20] | — | — | |||
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How is responsibility for the release of test results managed? (eg, who takes responsibility and editing before release) | [20] | — | — | |||
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Professionals’ level of engagement, knowledge, skills, and confidence in portals | — | [2,21,23] | — | |||
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What is expected of patients? | ||||||||
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Facilitators | |||||||
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Professionals support and encourage patients’ use of portals (eg, endorsement, reminders, and materials) | — | [22-24] | — | |||
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Patients’ willingness to enter basic information into portals or manage records | — | — | [18,19] | |||
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Barriers | |||||||
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Patient preferences regarding the entry of data into portals, increased knowledge, and managing records | [20] | [24] | [18,19] | |||
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Professionals or providers do not encourage patients’ use of portals | — | [23] | — | |||
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What is assumed about the network of lay care givers? | ||||||||
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Facilitators | |||||||
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None identified | — | — | — | |||
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Barriers | |||||||
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Patients lack help or support to access portals | — | — | [18] | |||
| 5. Organization | |||||||||
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Organization’s capacity to innovate | ||||||||
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Facilitators | |||||||
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Leadership involvement in portal design and development of policies for user training and the integration of patient portals into workflows | — | [24] | — | |||
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Communication around technical, interpersonal, and workflow aspects of portals | — | [23] | — | |||
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Organizational interpretation of government legislation related to portals | — | [24] | — | |||
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Barriers | |||||||
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Constrained financial context (eg, small or rural hospitals) | [20] | [24] | — | |||
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Organizational interpretation of government legislation | — | [24] | — | |||
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Lack of leadership support (fear and hesitancy in implementation) | — | [25] | — | |||
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Is the organization ready for technology-supported change? | ||||||||
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Facilitators | |||||||
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Policies in place to support portals (eg, universal access policy, security protocols, adherence audits, data availability, and timing) | [12] | [23] | — | |||
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Barriers | |||||||
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Lack of support for new forms of communication between patients and professionals | — | [24] | — | |||
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Lack of policies on access rights and authorization process (including proxy access and access for minors) | — | [23] | — | |||
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Ease of funding and adoption decision | ||||||||
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Facilitators | |||||||
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Internal and external exchange of information to improve the quality, safety, and effectiveness of care | — | [25] | — | |||
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Barriers | |||||||
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Providers’ concerns about diverting resources to the less disadvantaged (ie, those who can read and ask questions) | [20] | — | — | |||
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Integrating patient portal use across care transitions (ie, with other organizations) to improve care | [17] | [25] | — | |||
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Deciding on the balance between IT structure and implementation time and cost |
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[25] |
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Changes needed in team interactions and routines | ||||||||
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Facilitators | |||||||
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Integrating data release with workflow (ie, to facilitate professionals’ follow-up with patients) | — | [23] | — | |||
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Workload and work routines not adversely impacted or positively impacted (eg, time efficiencies) | — | [21] | — | |||
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Barriers | |||||||
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How to organize the release of results to patients without professionals’ help with interpretation and support (eg, real-time release or delayed released) | [20] | — | — | |||
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Professionals’ concerns about the impact of increased level of patient questions, patient overuse of messaging, increase in documentation time, and portals on workflow | [17] | [21,23,24] | — | |||
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Work involved in implementation and who will do it | ||||||||
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Facilitators | |||||||
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Involvement of professionals in workflow engineering and the evaluation of the impact of portal use on workload and processes | [17] | [23] | — | |||
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Barriers | |||||||
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None identified | — | — | — | |||
| 6. Wider context | |||||||||
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What is the political, economic, regulatory, professional, and sociocultural context of program rollout? | ||||||||
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Facilitators | |||||||
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Aspects of culture (doctors from English-speaking countries), including the coverage of portals, PHRsc, and EHRs in medical and nursing school curricula | [20] | [23] | — | ||||
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Health professionals’ liability concerns | [20] | — | — | ||||
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Health systems with a transactional component | [20] | — | — | ||||
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Resource for policy makers, health care specialists, and stakeholders to improve care and the quality of treatment | — | [25] | — | ||||
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National and international information exchange (interoperability) and other standards (eg, Health Insurance Portability and Accountability Act, International Health Level 7, regional health information exchanges, and key public infrastructures) | — | [23,25] | — | ||||
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Appropriate reimbursement mechanisms | — | [23] | — | ||||
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Barriers | ||||||||
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Reimbursement structures for electronic services | — | [23] | — | ||||
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Providers’ liability concerns (eg, breached privacy or patients’ harmful behaviors) | — | [23] | — | ||||
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Nonstandardized rules for developing and managing health information infrastructures | — | [23] | — | ||||
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Relationship between macrolevel and mesolevel (eg, organization) factors was not well explored | — | [22] | — | ||||
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Regulations (eg, Health Insurance Portability) do not cover portal developers and hosting organizations | — | [23] | — | ||||
| 7. Embedding and adaptation | |||||||||
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Scope for adapting and coevolving technology and service | ||||||||
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Facilitators | |||||||
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None identified | — | — | — | |||
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Barriers |
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Concern that medical record maintains integrity as a working document that facilitates the transfer of knowledge between health professionals | [20] | — | — | |||
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How portals can be extended beyond a single organization (ie, particularly in fragmented care delivery contexts)? | — | [23] | — | |||
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Organization resilience to critical events | ||||||||
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Facilitators | |||||||
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None identified | — | — | — | |||
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Barriers | |||||||
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None identified | — | — | — | |||
aNot available.
bEHR: electronic health record.
cPHR: personal health record.