Table 1.
Characteristics of the patient cohort.
| n (%) | Mean (SD) | Median [IQR] | |
|---|---|---|---|
| Individuals | 143 (100) | ||
| Visits | 1,291 (100) | ||
| Females | 75 (52.4) | ||
| GPA | 107 (74.8) | ||
| EGPA | 22 (15.4) | ||
| MPA | 14 (9.8) | ||
| Visits per patient | 9.0 (6.7) | 5 [6] | |
| Age (years) | 64.3 (14.6) | 66 [21] | |
| BMI | 27.3 (5.7) | 25.7 [6.6] | |
| Patient-assessed global disease activity score (A) | 2.6 (2.4) | 2 [4] | |
| Physician-assessed global disease activity score (B) | 1.8 (1.1) | 2 [2] | |
| Difference (A-B) | 0.8 (2.3) | 0 [3] | |
| Disease duration (years) | 9.2 (6.6) | 8 [9] | |
| Pain past 7 days (NRS) | 2.5 (6.1) | 2 [4] | |
| Global health status (NRS) | 3.8 (2.1) | 6 [3] | |
| Psychologic well-being (NRS) | 2.6 (2.1) | 2 [3] | |
| Functional status (HAQ Score) | 1.0 (0.7) | 0.8 [0.8] | |
| CRP (mg/dl) | 0.7 (1.1) | 0.3 [0.5] |
Global disease activity was assessed by patients (A) and physicians (B) during 1,291 clinic visits over a 10-year period. SD, standard deviation; IQR, interquartile range; GPA, granulomatosis with polyangiitis; EGPA, eosinophilic granulomatosis with polyangiitis; and MPA, microscopic polyangiitis.