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. 2023 Jan 25;8:e43377. doi: 10.2196/43377

Table 2.

Explanation of value-sensitive design (VSD) factors [18] and their alignment with interview data and systematic review [8].

Model, category, and factor Factor explanation or definition [18] Interview data theme Relevant interview data excerpt Relevant systematic review theme [8]
VSD

System feature


Connectivity Features that allow the user to interact with the devices and share information with others Connectivity among CGMa, pump, watch, and apps; data sharing and access (HCPsb and family); and downloading before sharing IPc14P: the “devices [CGM, pump, apps, etc]...talk to each other”
  • Impact on independence and relationships: data sharing

  • Device design and features: connectivity and calibration



Data analysis Features that allow the user to make sense of data over time Data trends and graphical outputs (display; CGM and pump) IP14P: “not always a hundred percent accurate” (using CGM data to calculate HbA1cd)
  • Device design and features: data trends



Data retrieval and storage Features that allow the user to access and store data Apps and web-based sources for information, cloud storage, and storage in devices (blood glucose meter and pump) IP6: “and the pump...it stores all the information that you have”
  • Data access discussed in terms of its impact on sleep and overnight experiences (eg, sensors)


Value


Accessibility The system’s availability, adaptability, and portability Technology adaption to new situations and conditions (eg, travel, sports, camp, sleepover, and night; regarding alarms, tape, size etc) and data accessibility in these situations (CGM and pump) IP1P: “having it [CGM] meant [child] could go to school camp”
  • Impact on sleep and overnight experiences

  • Experiences with alarms

  • Device design and features: discomfort



Accountability and autonomy Self-responsibility for habits and care performance, with independent behavior and decision-making Increased self-responsibility, independence from parents, sense of control, and interference of parents (CGM, FGMe, and pump) IP3P: “[child] doesn’t really want to have [child’s] parents knowing what [child is] doing all the time”
  • Impact on independence and relationships



Compliance Adherence, following the diabetes care plan Self-management compliance (style of management, including blood glucose testing, medication, etc) IP1 or IP1P: “tend to over worry, and overly focus [on diabetes care]”
  • Impact on blood glucose levels (better management decisions with technology)

  • Impact on sleep and overnight experiences (improved management at night)

  • Experiences with alarms (affect compliance at school)



Dignity Sense of pride and self-respect (impacted by negative outcomes or unfair treatment for performance) Dignity: discrimination and unfair treatment (school) IP3P: “you sort of feel like there’s this constant discrimination for something that [child] has no control over” (diabetes)
  • Impact on independence and relationships

  • Experiences with alarms (school)



Empathy Desire to be understood by others Empathy: shown by friends, family, and HCPs IP5P: “they [siblings] were all lining up for finger pricks” (empathy)
  • Impact on independence and relationships



Feedback Responses from others or technology Feedback: from HCPs and parents (CGM and pump) IP15P: “it [CGM] just constantly alarmed for everything”
  • Impact on independence and relationships

  • Experiences with alarms



Hope and joy Motivation to meet future-oriented expectations and personally valued goals, including joy in life Hope to meet the self-management goals with technology and increasing joy with technology, for example, through anxiety alleviation (CGM and pump) IP15P: “sometimes [child] likes to have a break” (hope for normality and enabling joy)
  • Expectations before technology use



Privacy Information protection when sharing sensitive (health) data Not mentioned in interviews Not mentioned in interviews
  • Not part of the themes



Sense making Ability to give meaning to data Sense making of data and understanding data based on diabetes education; graphical outputs were helpful IP16P: “we were learning so much about diabetes”
  • Device design and features: trends and graphs



Trust Trust in technology, oneself, and others Trust in body (confidence in self and hypo awareness) versus technology (accuracy, technology failures, time lag, and reliability; CGM and pump), and trust in HCP team IP14: “sometimes it [CGM] gets very inaccurate”
  • Device design and features: data lag

aCGM: continuous glucose monitor.

bHCP: health care professional.

cIP: interview participant identifiers for young people (eg, IP1) and for parents (eg, IP1P).

dHbA1c: hemoglobin A1c.

eFGM: flash glucose monitor.