Table 2.
Explanation of value-sensitive design (VSD) factors [18] and their alignment with interview data and systematic review [8].
| Model, category, and factor | Factor explanation or definition [18] | Interview data theme | Relevant interview data excerpt | Relevant systematic review theme [8] | ||||||
| VSD | ||||||||||
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System feature | |||||||||
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Connectivity | Features that allow the user to interact with the devices and share information with others | Connectivity among CGMa, pump, watch, and apps; data sharing and access (HCPsb and family); and downloading before sharing | IPc14P: the “devices [CGM, pump, apps, etc]...talk to each other” |
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Data analysis | Features that allow the user to make sense of data over time | Data trends and graphical outputs (display; CGM and pump) | IP14P: “not always a hundred percent accurate” (using CGM data to calculate HbA1cd) |
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Data retrieval and storage | Features that allow the user to access and store data | Apps and web-based sources for information, cloud storage, and storage in devices (blood glucose meter and pump) | IP6: “and the pump...it stores all the information that you have” |
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Value | |||||||||
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Accessibility | The system’s availability, adaptability, and portability | Technology adaption to new situations and conditions (eg, travel, sports, camp, sleepover, and night; regarding alarms, tape, size etc) and data accessibility in these situations (CGM and pump) | IP1P: “having it [CGM] meant [child] could go to school camp” |
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Accountability and autonomy | Self-responsibility for habits and care performance, with independent behavior and decision-making | Increased self-responsibility, independence from parents, sense of control, and interference of parents (CGM, FGMe, and pump) | IP3P: “[child] doesn’t really want to have [child’s] parents knowing what [child is] doing all the time” |
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Compliance | Adherence, following the diabetes care plan | Self-management compliance (style of management, including blood glucose testing, medication, etc) | IP1 or IP1P: “tend to over worry, and overly focus [on diabetes care]” |
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Dignity | Sense of pride and self-respect (impacted by negative outcomes or unfair treatment for performance) | Dignity: discrimination and unfair treatment (school) | IP3P: “you sort of feel like there’s this constant discrimination for something that [child] has no control over” (diabetes) |
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Empathy | Desire to be understood by others | Empathy: shown by friends, family, and HCPs | IP5P: “they [siblings] were all lining up for finger pricks” (empathy) |
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Feedback | Responses from others or technology | Feedback: from HCPs and parents (CGM and pump) | IP15P: “it [CGM] just constantly alarmed for everything” |
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Hope and joy | Motivation to meet future-oriented expectations and personally valued goals, including joy in life | Hope to meet the self-management goals with technology and increasing joy with technology, for example, through anxiety alleviation (CGM and pump) | IP15P: “sometimes [child] likes to have a break” (hope for normality and enabling joy) |
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Privacy | Information protection when sharing sensitive (health) data | Not mentioned in interviews | Not mentioned in interviews |
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Sense making | Ability to give meaning to data | Sense making of data and understanding data based on diabetes education; graphical outputs were helpful | IP16P: “we were learning so much about diabetes” |
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Trust | Trust in technology, oneself, and others | Trust in body (confidence in self and hypo awareness) versus technology (accuracy, technology failures, time lag, and reliability; CGM and pump), and trust in HCP team | IP14: “sometimes it [CGM] gets very inaccurate” |
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aCGM: continuous glucose monitor.
bHCP: health care professional.
cIP: interview participant identifiers for young people (eg, IP1) and for parents (eg, IP1P).
dHbA1c: hemoglobin A1c.
eFGM: flash glucose monitor.