Table 2.
Intraclass correlation coefficients comparing scores in patients reporting no change
| External standard measure | Parent assessment of my child: ‘same’ |
Child assessment of my life: ‘the same’ |
||
|---|---|---|---|---|
| n | ICC (95% CI) | n | ICC (95% CI) | |
| Enrolment and 6 months | ||||
| Parent Global | 67 | 0.32 (0.09, 0.52) | 78 | 0.37 (0.16, 0.55) |
| JAQQ | 65 | 0.57 (0.38, 0.71) | 71 | 0.52 (0.30, 0.69) |
| HRQoML | 62 | 0.48 (0.27, 0.65) | 74 | 0.51 (0.32, 0.66) |
| CHQ-Physical | 51 | 0.57 (0.35, 0.73) | 51 | 0.63 (0.43, 0.77) |
| CHQ-Psychosocial | 51 | 0.51 (0.27, 0.68) | 51 | 0.59 (0.37, 0.74) |
| PedsQL-Parent | 56 | 0.49 (0.26, 0.66) | 62 | 0.45 (0.23, 0.63) |
| PedsQL-Parent Physical | 56 | 0.52 (0.30, 0.69) | 62 | 0.43 (0.20, 0.61) |
| PedsQL-Parent Psychosocial | 56 | 0.55 (0.33, 0.71) | 62 | 0.55 (0.35, 0.70) |
| PedsQL-Child | 36 | 0.64 (0.41, 0.80) | 39 | 0.64 (0.41, 0.80) |
| 18 and 24 monthsa | ||||
| Parent Global | 238 | 0.53 (0.43, 0.61) | 253 | 0.43 (0.32, 0.53) |
| JAQQ | 249 | 0.72 (0.66, 0.78) | 241 | 0.66 (0.58, 0.72) |
| HRQoML | 223 | 0.51 (0.41, 0.60) | 245 | 0.55 (0.45, 0.63) |
a
Scores between 18 and 24 months are for all patients in the ReACCh-Out cohort who had available scores for parent global, JAQQ or HRQoML at those visits. There were few patients with scores for other measures at those visits.
CHQ: child health questionnaire; HRQoML: health scale of the quality of my life questionnaire; ICC: intraclass correlation coefficient; JAQQ: juvenile arthritis quality of life questionnaire; PedsQL: paediatric quality of life inventory.