Table 2.

Participant Characteristics

Characteristic	Median (Range) or N (%)
Caregivers who participated in 41 interviews [n=56]
Age	36 years (19 years – 53 years)
Relationship to the child
Mother	38 (68%)
Father	13 (23%)
Grandmother	3 (5%)
Grandfather	1 (2%)
Grandmother figure	1 (2%)
Education
< High School	9 (16%)
High School	16 (29%)
Some College	11 (20%)
College	17 (30%)
Missing	3 (5%)
Clinicians who participated in 5 focus groups [n = 33]
Non-physician focus groups (3)
Nurse	11 (33%)
Social Worker	3 (9%)
Respiratory Therapist	1 (3%)
Physical Therapist	1 (3%)
Speech Therapist	1 (3%)
Care Coordinator	1 (3%)
Physician focus groups (2)
Otorhinolaryngologist	2 (6%)
Pediatric Pulmonologist	2 (6%)
Pediatric Intensivist	4 (12%)
Neonatologist	3 (9%)
Pediatric Hospitalist	4 (3%)
Female	26 (79%)
Male	7 (21%)
Age category, in years
≤ 36	5 (15%)
36 to 45	15 (45%)
≥ 46	12 (36%)
Missing	1 (3%)
Years of service
<10 years	10 (31%)
10 to 20 years	11 (33%)
>20 years	11 (33%)
Missing	1 (3%)