Table 2.

Cognitive debriefing adolescent respondent sample: summary

Patient demographic characteristics	Prophylactic regimen (n = 18)	Inhibitor regimen (n = 2)	Total (n = 20)
Age
Mean	14.4	12.5	14.3
Median	14	12.5	14
(range)	(12–17)	(12–13)	(12–17)
Race/Ethnicity, n (%)
Asian-American	1 (5.6)	0 (0)	1 (5)
Black/African-American	2 (11.1)	0 (0)	2 (10)
Latino/Hispanic	1 (5.6)	0 (0)	1 (5)
White/Caucasian	13 (72.2)	2 (100)	15 (75)
Another Group Not Listed	1 (5.6)	0 (0)	1 (5)
Current School Grade, n (%)
6	2 (11.1)	1 (50)	3 (15)
7	2 (11.1)	1 (50)	3 (15)
8	3 (16.7)	0 (0)	3 (15)
9	4 (22.2)	0 (0)	4 (20)
10	3 (16.7)	0 (0)	3 (15)
12	2 (11.1)	0 (0)	2 (10)
High school graduate/college	1 (5.6)	0 (0)	1 (5)
Another Group Not Listed	1 (5.6)	0 (0)	1 (5)

Patient general health, disease and treatment characteristics	Prophylactic regimen (n = 18)	Inhibitor regimen (n = 2)	Total (n = 20)
Hemophilia Type, n (%)
Type A	17 (5.6)	2 (100)	19 (95)
Type B	1 (94.4)	0 (0)	1 (5)
Hemophilia Severity Level, n (%)
Severe	18 (100)	2 (100)	20 (100)
Number of comorbidities
Mean	.38	1	.45
Median	0	1	0
(range)	(0–2)	(1)	(0–2)
Lifetime Inhibitor Status, n (%)
Current inhibitor	0 (0)	2 (100)	2 (10)
… inhibitor status high	-	1 (50)	1 (5)
Past inhibitor	3 (16.7)	0 (0)	3 (15)
Never had inhibitor	15 (83.3)	0 (0)	15 (75)
% of Time Self-Infuses Without Assistance
Mean	86.3	96.5	87.3
Median	98	96.5	98
(range)	(50–100)	(94–99)	(50–100)
Current Regimen, n (%)
Current Inhibitor regimen	–	2 (100)	2 (10)
Prophylactic, regimen (no current inhibitor)	18 (100)	–	18 (90)