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. 2023 Feb 23;7:17. doi: 10.1186/s41687-023-00550-6

Table 3.

Top sub-concepts by Hemo-TEM domain

Sub-concept by Hemo-TEM domain Prophylactic regimen (n = 19) n (%) On demand regimen (n = 5) n (%) Inhibitor regimen (n = 6) n (%) Patient total (n = 30) n (%)
Injection difficulties
Inserting the needle correctly 10 (53) 2 (40) 4 (67) 16 (53)
Fitting treatment into daily schedule 8 (42) 3 (60) 2 (33) 13 (43)
Treatment frequency 10 (53) 0 3 (50) 13 (43)
Time to prepare and administer treatment 9 (47) 1 (20) 3 (50) 13 (43)
Finding a good site/vein 7 (37) 1 (20) 1(17) 9 (30)
Adherence Issues
Missing treatments 12 (63) 1 (20) 3 (50) 16 (53)
Delayed treatments 10 (53) 0 2 (33) 12 (40)
Refrigerating medication 8 (42) 0 2 (33) 10 (33)
Remembering to administer treatment 5 (26) 1 (20) 1 (17) 7 (23)
Infusing per doctor's recommendation/instructions 5 (26) 1 (20) 0 6 (20)
Emotional burden of treatment
Worry 9 (47) 3 (60) 2 (33) 14 (47)
Emotionally resolved/used to treatment 5 (26) 2 (40) 4 (67) 11 (37)
Anxiety/nervousness 6 (32) 2 (40) 0 8 (27)
Relief/comfort 4 (21) 2 (40) 2 (33) 8 (27)
Denial/resistance 7 (37) 0 0 7 (23)
Treatment-related physical burden
Blown veins 10 (53) 2 (40) 3 (50) 15 (50)
Pain 12 (63) 1 (20) 2 (33) 15 (50)
Scarring 9 (47) 2 (40) 3 (50) 14 (47)
Soreness 7 (37) 0 4 (67) 11 (37)
Coldness 7 (37) 2 (40) 1 (17) 10 (33)
Interference with daily life
Travel 12 (63) 4 (80) 6 (100) 22 (73)
Miss a day of work 4 (21) 1 (20) 2 (33) 8 (27)
Social activities 6 (32) 0 1 (17) 7 (23)
Stopping activities to treat bleed 3 (16) 2 (40) 0 5 (17)
Leave work early/arrive late 4 (21) 0 1 (17) 5 (17)