"skin genetic disorders" OR "port-wine-stains" OR "giant congenital melanocytic nevus" OR albinism OR "Hermansky-Pudlak" OR "Chédiak-Higashi" OR "neurofibromatosis type I" OR "Von Recklinghausen" OR Ichthyosis OR "ichthyosis vulgaris" OR "lamellar ichthyosis" OR "ichthyosis bullosa of siemens" OR "X-linked ichthyosis"	1
AND
Affect* OR Adjustment OR Adaptation OR Acceptance OR Satisfaction OR Happ* OR Optimis* OR Well-being OR Depress* OR Anxi* OR Mood OR Distress OR (Social AND Fuctioning) OR "Quality of life" OR QoL OR Appearance OR Disfigurement OR (Patient AND Satisfaction) OR Factors OR Expect* OR Impact OR (Disease AND Related AND Disability) OR (Quality AND Care) OR Psycho* OR Emotion* OR (Psychological AND Distress) OR (Psychological AND Stress) OR (Psychosocial AND Need) OR (Common AND Mental AND Disorder) OR (Stress AND Disorder*)