Table A1.
Most frequently selected questions.
| Question | Number of Times Selected | % * |
|---|---|---|
| 1. Has the cancer spread outside my prostate and how fast is it growing? | 10 | 76.9 |
| 2. Do I need to have more tests? | 4 | 30.8 |
| 3. Can you refer me to other health professionals to help me deal with my diagnosis and any side effects? For example: cancer nurse, psychologist, social worker, clinician, physio, etc. | 1 | 7.7 |
| 4. Who else can I talk to about treatment options for a multidisciplinary view? | 2 | 15.4 |
| 5. What are my treatment options (including clinical trials) and what do they involve? | 4 | 30.8 |
| 6. What are the benefits and risks of available treatments (surgery, radiotherapy, watch and wait)? | 5 | 38.5 |
| 7. Are the treatment options different in the public versus private system? | 2 | 15.4 |
| 8. What are the costs of each treatment? | 3 | 23.1 |
| 9. What treatment do you recommend and why? | 8 | 61.5 |
| 10. What are the chances the cancer will come back after my treatment and what would we do? | 5 | 38.5 |
| 11. Do I have to start treatment straight away or can I wait? | 4 | 30.8 |
| 12. How can I choose between available treatments (watch and wait, radiotherapy, surgery)? | 3 | 23.1 |
| 13. Are there information materials (printed or websites) you would recommend for me? | 2 | 15.4 |
| 14. What are the side effects of each treatment? Both short-term and long-term. | 10 | 76.9 |
| 15. How will treatments affect my sex life, erections and fertility? | 4 | 30.8 |
| 16. Will I have urinary problems (like incontinence)? Will I have to wear pads? | 7 | 53.8 |
| 17. Will I have bowel problems? | 6 | 46.2 |
| 18. How will treatment affect my quality of life? | 7 | 53.8 |
| 19. How can side effects be managed? | 4 | 30.8 |
| 20. How long are side effects likely to continue for? | 6 | 46.2 |
| 21. How might treatment affect other health conditions I might have? | 2 | 15.4 |
| 22. How long is it likely to take for me to recover after each treatment? | 8 | 61.5 |
| 23. When will I be able to get back to work and my usual activities? | 5 | 38.5 |
| 24. How often will my PSA be checked? How long will I have to get PSA tests for? | 3 | 23.1 |
| 25. Are there any support groups in my area? | 0.0 | |
| 26. Who can I talk to about how I’m feeling? For example: Cancer Council Helpline, nurse, clinician, family, friends, GP, etc | 2 | 15.4 |
| Additional 1-page QPL (scenario NOT diagnosed with LPC) | ||
| Could I still be diagnosed with prostate cancer in the future? | 1 | 7.7 |
| Will I need to have more biopsies or tests? | 2 | 15.4 |
| Do I need to have further follow-up appointments? | 1 | 7.7 |
* Out of 14 participants; PSA: prostate-specific antigen; GP, general practitioner; LPC: localised prostate cancer.