Box 2.

Disease Implications

Verbatims
“I’ve gotten depressions because I am a person so young and already with that disease” P1
“I worked until last year in August. I really needed work” P5
“I am a surgical nurse. In 2018, they began to dismiss the charges since I could not enter some surgeries. My illness limits me a lot, especially in my profession; So, I had to go looking for a retirement because, with my illness, they would not accept me. P7
“My toes were totally twisted. I remain very depressed. A whole life getting up early and not knowing that from one moment to the next I would no longer get up to work” P9
“It was terrible the first year, I was a 100% athlete, and I limited myself. It was not easy”. P29
“It started as paralysis. I could not walk, my feet, my hands, my knees did not respond, the pain was very strong. It stressed me out too much. It causes a lot of sadness that you really already think, why live? If the truth is, I am already useless. You feel useless”. P31