Box 4.

Patients’ Expectations

Verbatims
“Empower ourselves of our disease, since many people believe in myths, and the idea is to have knowledge that will serve one about the disease” P6
“Understand, and manage the situation and, above all, how to empower yourself from the disease”. P11
“Getting to the end of this program interests me because we are all here for that. But in itself, it is learning, taking from each partner the positive and the negative” P15
“Acquire all the knowledge that I can to benefit myself and that I have the ability to transmit the information to people. I want to do the full course-The two years, and I hope the opportunities continue to be given to me”. P20
“Be trained, be an expert patient. Better quality of life and help train other people who do not have this opportunity”. P23
“This course is going to teach me to be even stronger, to be more positive, to be able to be happier with myself and with my family”. P27
“Learn and deepen our knowledge, empowering ourselves with a better quality of life to be able to fight for our rights in a health system like the one we have” P28