Table 1.
Caregiver experience questions with principal component analysis factor loadings.
| Practical care burden | Positive care experiences | Emotional care burden | |
|---|---|---|---|
| How much do you enjoy being with care recipient (CR)? | 0.0700 | 0.3624 | 0.0393 |
| How much does CR argue with you? | 0.1143 | 0.1633 | 0.1731 |
| How much does CR appreciate what you do for them? | 0.0896 | 0.2938 | 0.0133 |
| How often does the CR get on your nerves? | 0.1506 | 0.2323 | 0.164 |
| Has helping CR has made you more confident about your abilities? | 0.0195 | 0.3957 | −0.1662 |
| Has helping CR has taught you to deal with difficult situations? | −0.0313 | 0.3416 | −0.1714 |
| Has helping CR has brought you closer to them? | 0.0587 | 0.4447 | −0.0612 |
| Helping CR has given you satisfaction that they are/were well cared for? | 0.0298 | 0.3600 | −0.0668 |
| Is/was helping CR financially difficult for you? | 0.1583 | −0.0900 | 0.0885 |
| If yes, how financially difficult? | 0.1585 | −0.085 | 0.0977 |
| Is/was helping CR emotionally difficult for you? | 0.2226 | 0.0776 | −0.0585 |
| If yes, how emotionally difficult? | 0.2268 | 0.1278 | 0.0182 |
| Is/was helping CR physically difficult for you? | 0.1916 | −0.0718 | −0.0484 |
| If yes, how physically difficult? | 0.1921 | −0.0665 | −0.0095 |
| If you helped CR with chores, how difficult was it for you? | 0.2347 | −0.066 | −0.116 |
| If you helped CR with shopping, how difficult was it for you? | 0.2393 | −0.0446 | −0.126 |
| If you helped CR with ordering prescriptions, how difficult was it for you? | 0.1996 | −0.1001 | −0.158 |
| If you helped CR with bills, how difficult was it for you? | 0.2265 | −0.0458 | −0.1207 |
| If you helped CR with personal care, how difficult was it for you? | 0.2312 | −0.0598 | −0.0742 |
| If you helped CR with getting around their home, how difficult was it for you? | 0.2347 | −0.0465 | −0.0968 |
| If you helped CR by driving them, how difficult was it for you? | 0.2205 | −0.0067 | −0.1207 |
| If you helped CR with transportation, how difficult was it for you? | 0.0901 | −0.0115 | −0.0639 |
| If you helped CR with medications, how difficult was it for you? | 0.2247 | −0.0655 | −0.1823 |
| If you helped CR with managing exercise/diet, how difficult was it for you? | 0.1936 | −0.1291 | −0.0678 |
| If you helped CR with communicating with care providers, how difficult was it for you? | 0.2032 | 0.0007 | −0.1165 |
| If you helped CR with coordinating medical care, how difficult was it for you? | 0.2245 | −0.0251 | −0.1133 |
| If you helped CR with managing health insurance, how difficult was it for you? | 0.1646 | −0.0389 | −0.0952 |
| If you helped CR with transitioning post–hospital care, how difficult was it for you? | 0.1774 | −0.0284 | −0.0813 |
| How much has your family disagreed over the details of CR's care? | 0.0775 | 0.0634 | 0.2774 |
| Do you think you do more than your fair share, less than your fair share, or a fair amount? | 0.0990 | 0.0243 | 0.3662 |
| Are you exhausted at night? | 0.1645 | −0.0169 | 0.3169 |
| Is care more than you can handle? | 0.1726 | 0.0255 | 0.3614 |
| Do you feel you have no time for yourself? | 0.1346 | 0.0002 | 0.3804 |
| Do you feel as soon as you get a routine going, CR's needs change? | 0.1519 | 0.0017 | 0.2889 |
Non-binary questions ranged from 1 to 5 on a Likert scale and were reversed in some cases to make them consistent with each other.