Table 1. Impacts of HAE on work and school, open-responses.

About work and school:

• I want to work, but I can't when thinking about what I might do if an attack takes place. I would trouble others around me.

• HAE affects the type of work I can do, how often I can go out, the amount I can eat, and what I can do before needing to rest.

• I suddenly become unable to perform any work.

• I can't do a night shift or work where there are not many other workers [in case I am ill]

• I can't afford to keep missing days from work. So I go to the hospital at night more often, which burdens my children.

• When attacks occur, I have stomach pain and vomit and can't do any house work. I need help from family. I'm scared about attacks.

• I miss school, or sometimes have to rest at the school infirmary.

• I can get a swelling just from holding or running around with my child.

• I can't look after my children, I can't do the housework. [when I have an attack]

Abbreviation: HAE, Hereditary angioedema.