Table 1.
Participants’ characteristics at baseline
| Characteristics | Total n [%] |
CA | CZ | IE | IT | NL | UK | |
|---|---|---|---|---|---|---|---|---|
| Family caregiver n | 88 | 18a | 22 | 10 | 13 | 14 | 11 | |
| Gender, male | 29 [33] | 5 | 8 | 3 | 5 | 5 | 3 | |
| Mean age (SD) | 61 (10) | 61 (9) | 62 (12) | 58 (9) | 57 (5) | 64 (11) | 61 (7) | |
| Educational attainment n | ||||||||
| Primary school | 1 [1] | 0 | 1 | 0 | 0 | 0 | 0 | |
| Secondary school | 50 [57] | 5 | 17 | 5 | 13 | 6 | 4 | |
| Undergraduate degree | 24 [28] | 8 | 4 | 3 | 0 | 6 | 3 | |
| Postgraduate degree | 12 [14] | 4 | 0 | 2 | 0 | 2 | 4 | |
| Employment status n | ||||||||
| Full time employment | 35 [40] | 8 | 11 | 2 | 8 | 3 | 3 | |
| Part time employment | 14 [16] | 1 | 1 | 3 | 1 | 5 | 3 | |
| Unemployed/Retired/Homemaker | 38 [44] | 8 | 10 | 5 | 4 | 6 | 5 | |
| Relationship to resident n | ||||||||
| Partner | 10 [11] | 1 | 2 | 1 | 0 | 4 | 2 | |
| Child | 71 [82] | 16 | 16 | 9 | 11 | 10 | 9 | |
| Sibling | 2 [2] | 0 | 2 | 0 | 0 | 0 | 0 | |
| Friend | 1 [1] | 0 | 1 | 0 | 0 | 0 | 0 | |
| Other | 3 [3] | 0 | 1 | 0 | 2 | 0 | 0 | |
| Nursing home resident n | 88 | 18‡ | 22 | 10‡ | 13 | 14‡ | 11‡ | |
| FAST score n | ||||||||
| 4) Mild dementia | 4 [7] | 0 | 0 | 0 | 0 | 3 | 1 | |
| 5) Moderate dementia | 1 [2] | 1 | 0 | 0 | 0 | 0 | 0 | |
| 6) Moderately severe dementia | 15 [25] | 3 | 5 | 2 | 0 | 5 | 0 | |
| 7) Severe dementia | 41 [67] | 2 | 17 | 4 | 13 | 4 | 1 | |
| Median length of stay, months (IQR) | 23 (15–37) | 40 (12–79) | 35 (16–69) | 27 (21–40) | 19 (9–28) | 23 (8–40) | NA | |
FAST: Functional Assessment Staging Tool, CA: Canada, CZ: the Czech Republic, IT: Italy, NL: the Netherlands, IE: Ireland, UK: the United Kingdom
aDemographics were missing for one family caregiver, ‡Missings per country for FAST score, CA: 12, IE: 4, NL: 2, UK: 9; and for Length of stay, CA: 4, NL: 2, UK: 11