Table 5.
Health status and healthcare use for all children by sickle cell disease (SCD) status (N=133 481)
| Children with SCD Unweighted n, n=(215) |
Children without SCD Unweighted n, n=(133 266) |
AOR for SCD vs no SCD (95% CI) | P value | |||
| Unweighted n | Weighted % | Unweighted n | Weighted % | |||
| Health impact | ||||||
| Limited in ability to crawl, walk, run or play | 22 | 12.70 | 2340 | 1.75 | 7.2 (3.9 to 13.3) | <0.001 |
| Needed special equipment | 4 | 1.47 | 1566 | 1.16 | 1.3 (0.4 to 4.4) | 0.647 |
| Took prescription medication for at least 3 months | 78 | 36.44 | 17 308 | 12.95 | 3.8 (2.4 to 6.2) | <0.001 |
| Reported health status fair or poor | ||||||
| Better | 69 | 33.42 | 29 475 | 20.73 | 1.5 (1.0 to 2.3) | 0.035 |
| Worse | 10 | 4.63 | 1792 | 1.33 | 4.1 (1.8 to 9.0) | 0.001 |
| About the same | 135 | 61.95 | 101 648 | 77.95 | 0.5 (0.4 to 0.8) | 0.003 |
| Miss school because of illness or injury (past 12 months) | ||||||
| 0 | 29 | 24.85 | 28 969 | 30.12 | 0.4 (0.2 to 0.8) | 0.007 |
| 1–10 | 78 | 59.37 | 60 803 | 65.45 | 1.1 (0.7 to 1.8) | 0.723 |
| 11–20 | 14 | 8.82 | 3176 | 3.26 | 3.8 (1.8 to 7.7) | <0.001 |
| 21–30 | 5 | 2.84 | 746 | 0.71 | 6.5 (2.4 to 17.6) | <0.001 |
| 31–40 | 0 | – | 174 | 0.15 | – | – |
| 40+ | 5 | 4.11 | 328 | 0.31 | 14.0 (4.5 to 43.1) | <0.001 |
| Healthcare and special education services use (past 12 months) | ||||||
| Saw a medical specialist | 56 | 23.56 | 18 836 | 14.29 | 2.3 (1.5 to 3.7) | <0.001 |
| Saw mental health professional | 22 | 9.82 | 9219 | 7.81 | 1.04 (0.5 to 2.2) | 0.911 |
| Saw a therapist | 22 | 13.20 | 8558 | 7.55 | 2.0 (1.0 to 4.1) | 0.040 |
| Saw an optometrist, ophthalmologist or eye doctor | 57 | 31.20 | 31 873 | 26.89 | 1.4 (0.9 to 2.3) | 0.126 |
| How many times have you seen a doctor within 12 months? | ||||||
| None | 9 | 3.06 | 12 651 | 9.19 | 0.2 (0.1 to 0.6) | 0.003 |
| 1–5 | 142 | 68.47 | 99 137 | 75.91 | 0.5 (0.4 to 0.8) | 0.004 |
| 6–9 | 28 | 14.72 | 11 842 | 8.82 | 2.6 (1.4 to 4.8) | 0.002 |
| 10–15 | 21 | 9.55 | 5239 | 3.86 | 3.5 (1.9 to 6.4) | <0.001 |
| 16 or more | 12 | 4.20 | 2921 | 2.22 | 2.2 (0.9 to 5.2) | 0.073 |
| Multiple visits to emergency room | ||||||
| None | 125 | 55.32 | 106 956 | 81.24 | 0.4 (0.2 to 0.6) | <0.001 |
| 1 | 34 | 15.75 | 16 969 | 12.50 | 1.0 (0.5 to 1.7) | 0.935 |
| 2–3 | 32 | 17.28 | 6869 | 5.01 | 2.9 (1.6 to 5.2) | 0.001 |
| 4–5 | 13 | 6.54 | 1089 | 0.79 | 4.8 (2.3 to 10.2) | <0.001 |
| 6–16+ | 11 | 5.11 | 634 | 0.45 | 9.3 (3.6 to 24.0) | <0.001 |
| Had surgery or another surgical procedure | 15 | 3.92 | 6286 | 4.76 | 1.0 (0.5 to 2.0) | 0.957 |
| Healthcare barrier | ||||||
| Could not use telephone | 5 | 3.62 | 2330 | 1.74 | 1.4 (0.4 to 5.5) | 0.613 |
| Could not get an appointment | 11 | 5.66 | 5882 | 4.45 | 1.1 (0.5 to 2.5) | 0.858 |
| Waited too long at the doctor’s office | 11 | 2.63 | 5457 | 3.95 | 0.6 (0.2 to 1.3) | 0.163 |
| No transportation | 12 | 4.42 | 2416 | 1.83 | 0.8 (0.3 to 1.9) | 0.646 |
| Could not afford prescription medicines | 1 | 5.45 | 230 | 1.37 | 5.1 (0.9 to 28.3) | 0.065 |
AOR, adjusted OR.