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. 2023 Mar 9;6(3):e232273. doi: 10.1001/jamanetworkopen.2023.2273

Table 5. Importance of Having Participant Values and Preferences Included in Decision-making.

Choice Participants who chose option, No. (%) (n = 40) Thematic analysis summary
Major themes Participants who chose and alluded to this theme, No. (%)
Not important (I do not want to know the details; I will defer this decision to the physician) 3 (7.5) NA NA
Somewhat important (I would like to know the benefits and harms of treatment and the rationale behind the physician’s decision; but I will follow what the physician feels best) 22 (55.0) First 24 h after birth is overwhelming, lot of things to process; so would want to be aware of benefits and harms, but will trust clinician’s judgment 17 (77.3)
Important (I want to have a discussion with the physician regarding the benefits and harms related to the most important outcomes and then make a decision together) 14 (35.0) Would like to be involved in the discussion regarding benefits and harms 6 (42.9)
Highly important (I would like to make the decision myself based on the information provided) 1 (2.5) NA NA

Abbreviation: NA, not applicable.