Table 5. Importance of Having Participant Values and Preferences Included in Decision-making.
Choice | Participants who chose option, No. (%) (n = 40) | Thematic analysis summary | |
---|---|---|---|
Major themes | Participants who chose and alluded to this theme, No. (%) | ||
Not important (I do not want to know the details; I will defer this decision to the physician) | 3 (7.5) | NA | NA |
Somewhat important (I would like to know the benefits and harms of treatment and the rationale behind the physician’s decision; but I will follow what the physician feels best) | 22 (55.0) | First 24 h after birth is overwhelming, lot of things to process; so would want to be aware of benefits and harms, but will trust clinician’s judgment | 17 (77.3) |
Important (I want to have a discussion with the physician regarding the benefits and harms related to the most important outcomes and then make a decision together) | 14 (35.0) | Would like to be involved in the discussion regarding benefits and harms | 6 (42.9) |
Highly important (I would like to make the decision myself based on the information provided) | 1 (2.5) | NA | NA |
Abbreviation: NA, not applicable.