| Understanding |
Cancer |
“they said they looked at cancer” P03 |
|
Heart disease |
“heart disease for instance” P07 |
|
Misunderstandings about results types |
“I think it was Huntington’s” P16 |
|
Misunderstandings about level of control |
“I think there was a comment box ‘is there anything else you would be interested in knowing?” P13 |
|
Unable to recall being asked |
“If I was asked that I honestly can’t remember.” P21 |
|
Unable to recall decision |
“I don't really remember but I would have thought we would have ticked the box to say that we was happy for any further investigations to be done.” P14 |
| Perceived benefits |
Preparedness |
“forewarned is forearmed as far as I’m concerned” P01 |
|
Influence lifestyle |
“if it does come back [as increased risk] try and change your diet or do some more exercise” P11 |
|
Information valuable due to role as a carer |
“Jake is going to need care going forward, so actually my health and wellbeing is incredibly importance for this situation.” P01 |
|
Family history |
“My wife she has some family history of breast cancer, so I mean if something comes up on that as part of this study then that is something I suppose we’re interested in” P13 |
|
Information seekers |
“I’d rather be given everything and know what’s going on and then deal with it as and when it happens” P05 |
|
High-risk result is unlikely |
“it’s most likely not going to happen” P07 |
| Concerns |
Feeling worried or anxious |
“For me personally I think then that’s a whole unknown world where I could possibly be opening up a world of worries for myself, ‘or what about this or what about that?’ when in fact those things may never happen.” P13 |
|
Concerns about implications for life insurance |
“My only hesitation…whether other companies would be interested in the data…as in insurance companies” P15 |
|
Concerns about future legal changes to protections |
“If I was to take out any new policies there would be an issue if that law was to change, especially for my daughters” P06 |
